DD Quarterly Spring 2004

Circulation 21,253

Publication of the Ohio Developmental Disabilities Council bringing disability issues and accomplishments to the attention of Ohioans.

So That None Shall Thirst

Chuck Collins, associate director of United for a Fair Economy and co-author with Bill Gates Sr. of Wealth and Our Commonwealth: Why America Should Tax Accumulated Fortunes, writes in his "Shrink, Shift, and Shaft" in the April Sojourners magazine, "We should be alarmed at the changes being legislated to reshape the way our government raises money through federal and local tax systems. Federal tax cuts in 2001, 2002, and 2003 have fueled massive deficits and blocked possibilities for spending on human needs. These tax cuts have ‘trickled down’ to worsen state and local budget deficits, forcing deep cuts in spending on poverty, health care, and education. Almost every state has been plunged into its worst budget crisis since World War II."

Collins goes on to report on the devastating shift taking place in federal and state budgets. States are shortening school years, cutting spending on Medicaid and removing low-income people from health coverage. State and local taxes are relying on highly regressive taxes, imposing a higher burden on the poor than the wealthy. And so goes Ohio.

Those at bottom pay the most painful price

More and more voices call for common sense and decency to prevail, as those on the lower end of the economic ladder pay the most painful price for current political maneuvering and erratic budgeting acrobatics. Collins reports, "The average state and local tax rate for the bottom fifth of income earners is 11.4%, more than twice the rate paid by the richest 1% of taxpayers."

Some want the penny tax repealed

Why shut off the pump during a drought?

The temporary penny sales tax is the power to the pump that at least provides some revenues while the well experiences a dry period; and that dry period seems far from over! It doesn’t make sense to shut down the temporary power to the pump now, a year earlier than its projected life, even if it isn’t the kind of power we prefer.

A bigger issue looms

David Ellis, of the Federation for Community Planning, suggests that recent cuts in department budgets are a result of tax revenues not growing sufficiently to meet budget needs. And even though departments have kept spending down to try to balance the budget, more devastating cuts have been ordered. A "structural imbalance" has resulted. A structural imbalance exists when we fail to provide sufficient ongoing revenues to meet ongoing expenses, especially because of an over-reliance on "one-time" money being used for ongoing purposes. The last budget bill created Ohio’s largest structural imbalance to date- nearly $4 billion. And $2.5 billion of that was the temporary one-cent sales tax increase.

Income tax not balanced fairly

Although federal legislators are currently deliberating a budget resolution that provides a blueprint of how future monies will be allocated, a plan to extend Medicaid assistance beyond 2004 has not materialized. So the "structural imbalance" grows and grows.

"The legislators originally crafted a bipartisan budget that effectively balanced program needs and fiscal responsibility," says Ellis. But in Ohio as in other states, shrinking progressive taxes (primarily income tax) and increasing regressive taxes (primarily sales tax) have created the over-reliance on regressive forms of taxation, which hit the pockets of those least able to afford them, and perpetuate a tax structure that furthers the distance between the "haves" and "have nots."

Federal proposals may worsen situation

All this translates into double jeopardy for people with disabilities and other groups all too often viewed as expendable. In addition, states tend to over-rely on Medicaid, so that any cuts in state dollars that could have attracted additional Medicaid dollars create a disproportionate negative impact on people with disabilities. Each dollar lost is a compounded loss for any service system that provides services using Medicaid dollars.

We should restructure carefully Many are calling for "tax reform" as a way to respond to this overall public funding malaise. But "reforming" a structure does not necessarily put more money in the coffers. Some current "reform" takes the form of "revenue neutrality;" that is, taxes that generate no increased dollars for government services. "Reform" can end up hurting certain groups even more. The rallying cry ought to be for restructuring tax systems to meet at least three basic principles:

1. Equity
2. Adequacy
3. Structural soundness and balance.

Those with the "wealth" need to contribute their fair percentage share of tax burden. Hitting those with fewest resources with higher percentage of taxes is simply the wrong thing to do. The question becomes moral and ethical as much as economic. As Collins points out, "These dire budget straits are largely the result of political and moral choices." It is a question of equity and fairness.

How we meet needs defines our morality

How the needs of marginalized people in any culture are met defines the morality and ethics of that culture. The continued slashing of necessary services to those who have disabilities or who are in some other way disadvantaged is a shameful stain on our culture.

Corporation vs. individual

A much better balance between taxation of individuals and corporations is needed, so that both sides of the balance are producing their fair share of revenue for services and supports.

Shrink, shift, shaft

In that same letter to shareholders Buffet shared a projection that dramatically illustrates the imbalance. "Berkshire, on your behalf and mine, will send the Treasury $3.3 billion for tax on its 2003 income, a sum equaling 2.5% of the total income tax paid by all U.S. corporations in fiscal 2003. Our payment will almost certainly place us among our country’s top 10 taxpayers. Indeed, if only 540 taxpayers paid the amount Berkshire will pay, no other individual or corporation would have to pay anything to Uncle Sam. That’s right: 290 million Americans and all other businesses would not have to pay a dime in income, Social Security, excise or estate taxes to the federal government."

We share common goals, so let’s get busy

All the energy expended on efforts to repeal the sales tax would be better spent on efforts to initiate a major restructuring of the tax code- focusing on a system based on progressive taxes that is equitable, adequate, and structurally sound and balanced.

Budgets, tax system restructuring, and the politics that surround it all will hit fever pitch in coming months. Whether to repeal the penny sales tax, whether to eliminate tax cuts to the wealthy or to increase the strain on middle and low-income taxpayers, whether to continue corporate tax breaks, where to make cuts in state and federal budgets- all these issues will effect people with disabilities and others who use public supports and services.

When we evaluate the initiatives, people with disabilities and their allies would be well served by contacting their state and federal legislators and officials to help them understand the real impact of these issues. Too many of us sit back and allow situations to exist that continue to strip away necessary supports and services. Get involved! Make those phone calls and send those letters and emails! And by all means, vote!

In the end, the overriding issue is not whether sufficient water exists in the ground. It’s a matter of how efficiently, effectively, and fairly it gets tapped and distributed to all in the family who need its sustenance. Let’s create a community that shares its water efficiently, effectively, and fairly...so that none shall thirst.

The Ohio Developmental Disabilities Council is a planning and advocacy group of 35 members appointed by the governor. ODDC receives and disseminates federal funds to create visions, influence public policy, pilot new approaches, empower individuals and families, and advocate system change.

8 East Long St., Ste. 1200
Columbus, OH 43215

Toll free (800) 766-7426
Voice (614) 466-5205
TTY (614) 644-5530
Fax (614) 466-0298

www.ddc.ohio.gov

It is the policy of the Ohio Developmental Disabilities Council and the AXIS Center to use person-first language in stories written by staff. Articles reprinted or quoted exactly as they originally appeared or were presented from sources other than staff may not reflect this policy.

For a free copy of the guide, "Person-First Language," contact AXIS at one of the numbers listed on back cover.

BCMH cuts hurt Ohio families

Legislature should restore funds

Bachmann said the initial cuts caused BCMH to get many families to apply for Medicaid. Sixty-five percent of BCMH families are now on Medicaid. Families of current participants are, for the most part, not at the 150% of poverty level that makes them Medicaid eligible. Bachmann described one case in which a single parent earning $33,000 per year for a family of two had to pay $10,000 in health care costs before her child became eligible for Medicaid.

State Medicaid cuts, proposed this spring, will further challenge BCMH families and other Ohio families if they take effect.

Bachmann explained that the new BCMH cuts hit lower-middle income families seriously and are designed to trim more than 5,000 recipients from the current roster of 23,000.

Medicaid pays for everything, while BCMH pays only for select extra needs caused by chronic conditions of eligible children until they reach 21 years of age. In other words, BCMH is a stop-gap program. In explaining how coverage works, Bachmann said BCMH doesn’t pay for broken legs. "Not unless a broken leg is part of the select extra need caused by a specific covered chronic condition," she said.

Cost sharing calculated in a new way

BCMH has a cost-share instruction packet that a family can receive ahead of its renewal time by calling BCMH toll-free at (800) 755-4769.

Services reduced, too

• Sinusitis, tonsils/adenoids, serous otitis media (often resulting in ear tubes), and hernias are no longer eligible medical conditions unless the child has another covered diagnosis.
• Diapers will no longer be covered at age three. They will be covered at age five with a doctor’s request and documentation of need.
• Respiratory Distress syndrome (RDS) will be eligible only for five hospital days on the diagnostic program. RDS will no longer be eligible on the treatment program.
• The Adult Cystic Fibrosis Program can no longer be supplemented by the BCMH funds meant for children.
• Therapies are scrutinized carefully. A committee of interested parties has determined that BCMH will approve 99 units of each therapy, which equals about 25 sessions of each therapy per year. If more is needed, the therapist has to submit a plan and show progress toward goals. This is much like insurance does.

"Public health nurses are devastated," said Bachmann. "They’re in the trenches seeing the effects of these cuts, and they wonder what families can do."

Families must first use insurance

Bachmann said that about 90% of BCMH families have insurance.

"Because of the economy," she said, "We have more kids with needs now." The poor economy caused the budget cuts, and the poor economy created more need for BCMH assistance.

Health providers already go the extra mile

So what is the magic bullet in this scenario?

For more information, contact: Kathy Bachmann, Ohio Department of Health, BCMH, 246 N. High St., 2nd Fl., Columbus, OH 43266-0588, (614) 752-2930, kbachman@gw.odh.state.oh.us

Website: www.odh.state.oh.us

BCMH case in point: Serious needs, no end in sight

Hayley has had two surgeries and has four more to go that her parents know of. One of the anticipated surgeries is a heart surgery to reroute a vessel that wound a tight ring around her esophagus and trachea. She’s fed through a G-tube in her stomach. She wears a molding helmet to reshape her head. Her occupational therapist said that she will need occupational therapy and physical therapy twice a week for the rest of her life. Currently Hayley meets with about ten different specialists.

Insurance and income dilemmas

Melissa, says in a letter to BCMH, "At what age should I explain to my daughter that we could not afford her surgeries because her daddy had a job and insurance?"

The dilemma is real. Their insurance has a $1,000 maximum amount per year, per person, that the family pays for items covered by the insurance.

Therefore, the family cannot meet the BCMH "costshare" of roughly $20,000 per year for Hayley. Costshare is the amount BCMH determines you have to pay, out of pocket, above and beyond what private insurance pays for. Once you reach that threshold, BCMH should help.

Additionally, the family’s insurance has a $1 million lifetime maximum per person. Projections for Hayley show that by age 3, she will have exhausted her maximum. Melissa said she shopped for additional coverage with no success.

The family has applied for waiver programs, but most have waiting periods of five to seven years. The family doesn’t have that long.

One insurance agent advised Melissa to have her husband quit his job so they could go on welfare in order to receive the help they needed. Melissa responded, "We are hard working people and believe in pulling our own weight. We just need some help and don’t know where to turn." She and her husband live modestly, if not frugally, and have the usual bills of any family. On top of it all, however, are the ongoing needs of a special little girl in their lives.

"We are at the point where we have to discontinue Hayley’s occupational and physical therapy because we simply can’t afford it," Melissa said. Currently, it’s covered at 90% by their insurance company, but the bills still exceed $100 a week to the family. The upcoming additional surgeries and hospital stays will be covered only at 90% as well.

Will progress stop?

Insurance does cover feeding bags to get her formula into her G tube. "I fear Hayley will be tube-fed forever," said Melissa.

Melissa sent an appeal letter to BCMH and asked that Hayley’s case be reconsidered- "not just for my daughter, but for all the ‘working class.’ "

Kathy Bachmann of BCMH program said the bureau was re-examining the Dovala case.

Mother appeals for help for two children

Our oldest son has numerous health problems. He has growth hormone deficiency, asthma, allergies, hypothyroid, and recently was diagnosed with cataracts which are believed to be caused by some of the medication that he has been on to treat his asthma.

Our oldest daughter has scoliosis. Her back has gotten better since she started treatment. She will need to be checked more often as she nears puberty. She is ten now and is probably getting close.

We also are blessed to have twin identical girls who are five. Our twins were born premature but in general have been pretty healthy. Because of their age I have been at home with them. It wouldn’t pay for me to work considering the cost of child care for two young children.

Over the past three years our insurance premiums have increased dramatically while the amount of coverage we have has been reduced. We no longer have optical or dental insurance. My husband has received only a 50-cent raise in the past three-and-one-half years. We have lost $2 per hour out of our income due to insurance premiums. Being a single-income family is quite difficult. Our expenses keep increasing while our income stays the same or decreases.

Our son’s medicine for his asthma will cost us approximately $200 per month. We average paying at least $200 per month in medical expenses already. That was our average with BCMH last year. Without BCMH, we will be paying approximately $500 to $600 per month. The growth hormone he receives is unbelievably expensive.

The company that provides his growth hormone charges the insurance $13,000 to $18,000 per month. We don’t know yet how much our portion will be. We have already come to the realization that if it gets to the point that we can’t afford to feed our kids or provide basic things for them, that the growth hormone will have to be stopped. His asthma medication is a necessity just to keep him alive, so that is one thing we cannot stop purchasing.

I realize we are among a large group who are in the same situation, but I can’t begin to express how difficult it is to be there. We do not live above our means. We take care of our kids and pay our taxes. We hate being in a situation where we might be forced to make a decision between paying bills and paying for our son’s growth hormone.

I realize that sometimes cuts need to be made to pay for other things, but I truly believe that this is not a place where cuts should be quite so deep. I speak for many other families when I say that I hope you will reconsider our application for treatment.

If you want to help children and families in Ohio like the ones who have shared their stories, write to your state legislators and ask them to restore $6 million to the BCMH budget in the Ohio Department of Health.

Programs help with prescription drug costs

• Prescription Relief
• Rx for Ohio
• Golden Buckeye Prescription Drug Savings Program

Rx for Ohio

When you complete an on-line questionnaire, Rx for Ohio allows you to search over 1,400 medications in more than 300 government, industry and privately-sponsored programs.

Find Rx for Ohio on the Web at: www.rxforohio.org/ or write to: Rx for Ohio, 172 E. State St., Suite 410, Columbus, OH 43215, toll-free (877) 794-6446, e-mail rxforohio@hotmail.com.

Prescription Relief

Prescription Relief not only enrolls and fills out all the paperwork for the applicant, doctor, and pharmaceutical company, but it also has daily hours of operation where patient advocates are available to answer patient calls. The program offers more than 3,000 brand and generic medications. The pharmaceutical companies ship the medications directly to your prescribing physician’s office for you to pick up.

Any insurance coverage for prescriptions, other than an HMO, disqualifies you from this program.

You will need to pay a $25 case management fee and provide information to demonstrate your need (for example, your most recent federal tax return, Social Security benefit verification, or a copy of your monthly disability check, and so on).

Find Prescription Relief on the Web at: www.prescriptionrelief.org/ or contact: Prescription Relief, P.O. Box 10, Dublin, OH 43017, (614) 792-9779, e-mail info@prescriptionrelief.org.

Golden Buckeye Prescription Drug Savings Program

Golden Buckeye offers:

• A pharmacy locator service on-line to find pharmacies near you that honor Golden Buckeye discounts
• Deeper discounts and home delivery (prices vary, and you can use an online price finder or call customer service)
• Access to manufacturers’ special assistance programs that offer added savings to those most in need

Locate Golden Buckeye Prescription Drug Savings Program on the Web at: www.goldenbuckeye.com/buckeyerx.html or write: Golden Buckeye Prescription Drug Savings Program, Ohio Department of Aging, 50 W. Broad St., 9th Floor, Columbus, OH 43215-3363, toll-free (866) 301-6446.

Ohio Advocates for Mental Health 21st Annual Meeting

To live, to learn, to work

August 13-15, 2004
Holiday Inn Worthington

Conference is being planned in conjunction with the Ohio Federation for Children’s Mental Health.

Attendees will be primarily individuals with mental illness.

For more information, contact: OAMH, (800) 589-2603 in Ohio, or visit: www.ohioadvocates.org

Micro Enterprises prove independence can come with business ownership

Basket business paves way to career for two friends

It all begins with DD Council’s Employment Outcome Project that features Micro Enterprises.

After growing weary of working at Waycraft Industries, Inc., the workshop in Crawford County, Stilwell was looking for something that could possibly be more profitable.

"Cheryl Kelley came to me because she knew I wanted a business," Stilwell said. "She is our Habilitation Manager."

"Jamie asked me to become a partner," said Dyer, also a Waycraft employee. "We were buddies before and both of us graduated from the same high school."

With Kelley’s help, and that of the Crawford County Board of MRDD, the plans to create a business taking orders for Amish-made products was initiated. The pair used seed money from the Micro Enterprise project and matching funds from the MRDD Board.

The pair started their business with $10,000, because each person entering a business can obtain $2,500 from both entities (MRDD and Micro Enterprise) for a $5,000 total. So for Dyer and Stilwell, partnering meant they received double that amount.

The men receive their products from Amish basket maker Levi Hershberger. Dyer processes the mail orders, and Stilwell processes all Internet orders.

"We get customers from everywhere," Dyer said. "Craft shows, by word of mouth..." And their website, www.2guysnobeard.com, is a big help. There, shoppers can see a full line of basket products, as well as quilted carry-alls.

"I think the web site will bring in more customers for our products," Dyer said.

Dyer and Stilwell said others with disabilities should consider going into business for themselves. But, Dyer advised, planning is everything. "Make a good business plan, have a good support team, and have patience to get the business up and running," he said, adding that a visit to a Micro Enterprise training is very important.

The two, who both have cerebral palsy, said being in charge has helped them to become more independent. "I can get out and go places and I get a paycheck, which I never had before," said Stilwell.

For Kelley, a self-proclaimed "basket freak," the business, which took between six and eight months to create, has been a joy to help launch because it provides a good opportunity for two industrious men with disabilities. "It’s all just kind of evolved," she said. "The seed has been planted. We fertilized the seed with all the different ideas, and now they are harvesting the product by selling baskets."

Kelley said other county MRDD boards should investigate the possibilities of Micro Enterprise. "Everybody has a dream, and not everybody wants to work in a workshop. Some people want to take their dream and make some money."

She said Bob Morgan, who heads the Employment Outcome Project, is a good resource, and he has consultants who are also very good business guides. "They will tell you if a plan is viable," she said.

For more information, contact: Dyer-Stilwell Amish Collectibles, LLC, 1650 E. Southern Ave., Bucyrus, OH 44820, (419) 569-2376.

Website: www.2guysnobeard.com

Teamwork provides independence for trio

The company, which opened in December, 2002, is co-owned by three men with disabilities who formerly worked at the Waycraft Industries sheltered workshop in Crawford County.

TWM Salvage is a product of the Micro Enterprise program, a creative option into the workforce for people with disabilities. The project is supported by a DD Council.

TWM is named for owners Tim Plasencia, Wes Lyons, and Mike Neff, all men in their 30s who sought greater independence in their lives... and have found it.

"I was in the workshop for 14 years," Plasencia said. "I had enough of that. I own my own business now."

Through $2,500 of Micro Enterprise seed money for the initial owners, plus a match for each through the Crawford County Board of MRDD, the business got off the ground with $15,000.

After eight months in business, the three owners elected to add another co-owner: Derrick Adams.

TWM Salvage currently operates out of a 4,000 square foot warehouse with an office. However, Adams said that TWM is looking to move into a larger facility later in the spring.

"I think it’s good for the guys to be able to do this," Adams said. "They do well at it, they all seem happier, and I think they are better off."

He said the key is to have a solid business plan and follow-up on the progress of any endeavor.

Plasencia likes that he gets a paycheck and can work until 2:30 p.m. each day.

Lyons agreed. "I really enjoy it. I have the opportunity to make more money, and I get more freedom to make more choices."

The men sell the stripped down electronic components to recycling centers for 25 cents per pound. Sometimes, businesses donate electronics for the trio to process, and then buy it back from the company. Adams explained that companies like to harvest the copper, gold, silver, brass and aluminum used in the various circuit boards and other equipment.

Plasencia and Lyons disassemble the larger salvage equipment, and Neff handles the smaller items.

Bob Morgan, coordinator of the Employment Outcomes Project, said TWM is an example of independence in the making.

"The wonderful thing is it’s a partnership between three guys who like each other and whose skills compliment each other. And Adams brings in the fourth component," he said.

Adams, who does not have a disability, oversees the operation by doing "a little bit of everything" but primarily maintains the company’s books and payroll.

For more information, contact: TWM Salvage, 118 E. River St., Bucyrus, OH 44820, (419) 562-2900, TWM_Salvage@hotmail.com

Website: www.twmsalvage.com

Workshops help businesses get started

The event was hosted by Bob Morgan, coordinator of the Employment Outcomes Project. The project, which is in its fourth year, is funded by the DD Council, and features two components- Micro Enterprise and Employment Agent.

"The DD Council has been very gracious in funding a demonstration project," said Morgan. "The businesses that pop up and are viable really surprise you,"

New business owners describe experiences

Through Micro Enterprise, the person with a disability creates a business plan with the support of case managers and others. The Employment Outcomes project provides $2,500 toward the new business. That money is matched by a county MRDD board so that each business can start up with at least $5,000.

The Micro Enterprise approach, said Morgan, uses less taxpayer money to help an individual with a disability. Professionals such as job coaches, habilitation specialists, etc. should not be afraid of trying a Micro Enterprise because the project is very realistic in assessing whether a business idea can realistically thrive.

Morgan admits the idea of business ownership or people with disabilities is a bit "radical." But, he asserts that those assisting the person with a disability in business endeavors tend to work harder at it to achieve success.

Trainers serve as advisers

Rosimos was the chief advocate for her brother Larry, who has severe disabilities, and helped him create a business. Smith is a former case manager in the mental health field.

"One of the best things about Micro Enterprise for people with disabilities is its flexibility," said Rosimos. "It allows people to work around their medical issues."

The pair consult with those in the MRDD field who recognize possibilities for those with disabilities in Ohio who want to start a business. Employment Outcomes is open to all those who qualify for services from a county MRDD board.

"They do the training," Morgan said. "They are the advisers."

Project builds independence

"I think it’s an exciting process for people with disabilities to go through when they want to pursue employment that is not one of our traditional models," he said. "They want to be employed, earn a living, and be in control of their own destiny. There is no better way of carrying out the idea of self-determination other than with the goal of having your own business."

The CCBMRDD and S.A.W. Inc. has hosted two of Micro Enterprise workshops.

Employment agents find meaningful jobs

"Whoever’s willing to invest time and energy to help a person with a disability find employment should get a reimbursement," Morgan said.

Employment Outcome workshops are held throughout Ohio. For a schedule or more information, contact: Robert Morgan, 191 Somerset Road, Delaware, OH 43015, (740) 368-5800 ext.100.

Website: www.mrdd.net

Art on Wheels brings creative process to NE Ohio

For 15 years Art on Wheels, Inc. has brought the artistic experience to people of all abilities in northeast Ohio. Last year, it was awarded $12,000 through DD Council’s Funding for the Arts grant.

"We say Art on Wheels ‘delivers’ the creative process," said executive director and founder Carolina Martin. "We feel it’s very important to include people from the entire community in the artistic process. We bring them all (people with and without disabilities) together."

The project provides art supplies and guidance to one individual or to an entire group. When it first began, Art on Wheels served 15-18 people. Today, it serves between 15,000-18,000 throughout Lake, Cuyahoga, and Medina counties.

The project teaches visual arts, computer art, clay, costume making, and all other types of art processes.

"We are known as an arts organization that takes the creative process from its beginnings with a thought or an idea, to its end, which is a finished product that is exhibited and/or purchased," Martin said.

Art on Wheels features a traveling exhibit called "Voices of Expression" featuring a variety of works made by people with all types of disabilities. "I like to take it anywhere- to an educational or medical facility with an art-oriented space with high visibility," said Martin, who continually looks for new places to showcase the display.

"We specifically promote artists with disabilities by first offering them the opportunity to explore the creative process, and then by working with staff to do in-service," Martin said.

Counties also hire Art on Wheels to go to various centers and train staff on how to offer meaningful arts activities. "It’s art -and not something to just keep somebody busy," says Martin.

Martin was inspired to create Art on Wheels by her mother Charlet, who died in 1989. Charlet was an artist and playwright who enjoyed toting art supplies around in a little red wagon, which today serves as a symbol for the current program.

As the years went by, Martin decided to match her mother’s love of art with her own background in teaching, art education and psychology.

Betty Easley, a habilitation assistant at the Beachwood Activity Center in suburban Cleveland, has experienced Art on Wheels at the center for the past four years. "(The people here) look forward to it," she said. "and it brings out their natural abilities for art."

Easley said the public wins by seeing creations from Art on Wheels. "They are then aware of how creative and vibrant people with disabilities are," she said.

Some participants’ art has sold for $150-$250, Easley said.

Suzanne Russell, 32, an artist with a disability who takes part in Art on Wheels, enjoys making creative projects. "I take a piece of paper and make shapes with color paper. It’s fun, I like it. There are a lot of fun things to learn," she said. Her framed artwork is currently on display at the University Center in Cleveland.

Art on Wheels Board Member Ted Sherron, vice president of Marketing and Public Relations for the Cleveland Institute of Art, appreciates the efforts of the project.

"Art on Wheels is unique in that it is the only arts organization in this region devoted to giving a creative voice to individuals of all abilities. It serves to build much-needed self-esteem," Sherron said.

Along with providing art instruction and supplies, the program also employs people with disabilities at its gallery/studio. Martin said the program enjoys its good working relationships with the Cuyahoga County, and Lake County boards of MRDD, as well as the Cleveland Museum of Art.

For more information, contact: Carolina Martin, Art on Wheels, 1284 Riverbed St., Cleveland, OH 44113, (216) 941-7643, Carolina@aowinc.com

Apply now for Funding for the Arts

Awards will be from $2,000 to $12,000. Deadline for receipt of applications is July 26, 2004.

For profit and non-profit organizations, and individuals in Ohio that are committed to promoting artists with disabilities, are encouraged to apply.

Artistic disciplines can include, but are not limited to:

To request an application, contact: DD Council, (800) 766-7426, (614) 466-5205, (614) 644-5530 tty or visit: ddc.ohio.gov

Cleveland’s Crooked River Arts to feature Art on Wheels

The Second Annual Crooked River Arts Fest will take place in Cleveland, Saturday, June 19, 2004, noon-6 pm. The event is planned in collaboration with ArtSpace/Cleveland, and Lolly the Trolley tour of artist studios in the city. The tour will take guests stop by stop to studios, with Art on Wheels being the last stop. Fine artists will exhibit and sell artwork, musicians will be on hand to serenade. For more information, contact Art on Wheels. (See page 11.)

Three appointed to ODDC

The Ohio Developmental Disabilities Council (ODDC) recently announced the appointment of three new members: Cynthia Walker of Hudson, and Paula Rabidoux and Kim D. Linkinhoker of Columbus.

Walker was parent of a 21-year-old daughter, Rachel, who had multiple disabilities and recently died. Walker and her husband also have three adult sons. She devoted 21 years of her life to gaining the highest quality of life possible for Rachel.

For two years she served as parent advocate and educator for the Arkansas Disability Coalition. She also served on several councils and boards of disability-related organizations in Arkansas. Now, with her work on ODDC, she hopes to continue efforts to improve lives of Ohioans with disabilities, reinforce what is working, and work toward system change where necessary.

Rabidoux, who has her doctorate in speech-language pathology, has been on the staff at The Ohio State University Nisonger Center since 1999 serving as coordinator of Speech-Language Pathology, and then in 2001 as training director for LEND (Leadership Education Excellence in Neurodevelopmental and Related Disabilities).

In her studies she specialized in literacy and children with developmental disabilities. She has been involved in Nisonger’s Rural Developmental Clinic Initiative for nine years, providing developmental services to underserved Appalachian areas of Ohio. She also helped start a series of book clubs in Franklin County for adolescents and adults with cognitive disabilities.

Linkinhoker works at the Ohio Department of Mental Retardation and Developmental Disabilities, where he is assistant deputy director, Systems Innovation, Technical Assistance and Training. For 27 years he’s worked in jobs related to disability services at the county and state levels of mental retardation and developmental disabilities and with the Ohio Rehabilitation Services Commission.

Linkinhoker believes his most important role on ODDC is to continue the strong linkage between ODMR/DD and the ODDC and offer insight into public policy initiatives undertaken by ODDC.

Governor Robert Taft appointed Walker, while Linkinhoker, and Rabidoux were chosen to serve by their agencies.

ODDC recruits applicants

ODDC is currently seeking applicants for membership terms beginning in November 2004 for the following categories:

• Individuals with developmental disabilities
• Parents or guardians of children with developmental disabilities
• Immediate relatives or guardians of adults with mentally impairing developmental disabilities who cannot advocate for themselves.

All candidates should have: experience serving on committees, boards, agencies or organizations concerned with people with developmental disabilities; first-hand knowledge in the developmental disabilities field; and time to attend monthly meetings, including time to work on at least two committees.

Serving as a member of Council provides the opportunity to get involved and work collaboratively with state policymakers, local providers, and consumers to plan and conduct activities that will increase and support the independence, productivity, and community integration of people with developmental disabilities.

Governor Taft will appoint members for three-year terms. Applications must be postmarked by June 11, 2004.

To request an application, contact: DD Council, 8 E. Long St., Suite 1200, Columbus, OH 43215, (614) 466-5205, toll-free (800) 766-7426, tty (614) 644-5530 or visit: ddc.ohio.gov

The ADVOCATES

The Advocates, a DD Council Advocating for Public Policy Change (APPC) site, now operates from a suite of four offices, said Wynema Mebane, president of the organization. Previously, the Advocates was housed in the homes of its volunteer staff.

"The Advocates is becoming hands-on advocacy so that families with members with disabilities can become more aware of the legislative as well as local changes that are taking place for people with disabilities," Mebane said.

In December, 2003, the organization officially became a registered 501(c)3 non-profit, she added. Begun as a residential coalition eight years ago, those involved in The Advocates wanted to stretch its wings "and operate at another level," Mebane said.

The Advocates serves nearly 500 members in Montgomery and Green counties, as well as parts of Miami and Warren counties. With the new office, families seeking information can have a physical location for meetings, and smaller, more intimate workshops.

"We can help walk (families) through some of the (advocacy) issues," she said.

Open three days per week, and relying on an all-volunteer staff, The Advocates provides information to families "to give them a stronger voice," she said. "Our volunteers are the moving force of the operation here."

Mebane, who has a 35-year-old son with a disability, said the Advocates has helped families to understand Ticket to Work; Medicaid Buy-In; the Waiting List issue (H.B. 94) which hopes to create more residential services within communities for families; the Olmstead decision, which advances community living; and the Family Support Collaborative.

The Advocates has brought in Ohio Legal Rights Service representatives to inform families about issues, Mebane said. Other member activities have included helping to bring awareness about the local Human Services levy, Mebane said.

"People can come here for resource material and leave with some answers to their questions," she added.

State Representatives Arlene Setzer and Fred Strahorn, Montgomery County Commissioner Chuck Curran, and Jeff Davis, director of Constituent Services for the Ohio Department of MRDD joined DD Council Executive Director David Zwyer at the ceremony.

For more information, contact: Wynema Mebane, The Advocates, 4140 Linden Ave., Dayton, OH 45432, (937) 781-9890, (937) 781-9891 fax, e-mail: tadv110@sbcglobal.net

News from Ohio Legal Rights Service (OLRS)

Ohio Legal Rights Service
8 E. Long St., Suite 500
Columbus, OH 43215-2999

Toll-free: 1-800-282-9181
Local: 1-614-466-7264
TTY toll-free: 1-800-858-3542
TTY local: 1-614-728-2553
Fax: 1-614-644-1888

www.olrs.ohio.gov
http://olrs.ohio.gov

Highlights from OLRS 2003 State Annual Report

OLRS advocacy resulted in increased opportunities for individuals in communities and neighborhoods to obtain self-determined services, housing, education and employment. OLRS advocacy also resulted in increased safety of individuals with disabilities, and protection from abuse, neglect and rights violations. OLRS strives for appropriate admissions to and discharges from residential facilities, as well as public and private psychiatric hospitals.

Within agency priorities, OLRS serves individuals with any significant disability, and across a broad spectrum of problems and issues. This article briefly highlights several areas of OLRS work.

OLRS advocated for accessible public accommodations allowing equal access to school, work, businesses and recreation.

The parent of a young child complained that parking lots at two local businesses were not accessible to the family van equipped with a ramp, and that the businesses had ignored attempts to work with them for more than a year. OLRS negotiated and one business agreed to double the number of “handicapped” spaces, add signage, and restripe that parking area. The parking lot is now in compliance with the Americans with Disabilities Act Accessibility Guidelines (ADAAG). The property owner of the other business agreed to add disability parking to the lot to comply with ADA Title III.

OLRS advocated for the rights of people with disabilities to live where they choose

OLRS represented a client of a state Behavioral Health Organization (BHO) who was discharge ready, but for whom community placement was unavailable. Based on a review of records, and after discussions with all the parties, OLRS sent a demand letter to the state department of mental health, advising that OLRS would institute a lawsuit pursuant to the ADA, Rehabilitation Act, and due process seeking the client’s discharge and community placement to an appropriate setting with supports. OLRS then negotiated a discharge plan with the hospital. The community provider objected to this plan and filed an administrative appeal with the state. When that appeal was denied, the provider found an apartment for OLRS’ client. As a consequence of OLRS intervention in this case, the client was discharged to the apartment and receives necessary supports from the provider agency.

OLRS protected the safety of children and adults

The parent of a first grader who has autism visited her child at school and found her tied to a chair. OLRS investigated and found that the Individualized Education Program (IEP) did not address the child’s behaviors, and that the school was using physical restraints instead of developing a plan for positive alternative behaviors. OLRS attended several IEP meetings and requested that the district contract with a behavior consultant. The district did so, and the behavior consultant assisted the IEP team to write and implement a positive behavior plan.

OLRS advocated for equal opportunity and reasonable accommodations in employment

OLRS successfully represented a client at Ohio Civil Rights Commission mediation. The mediation resulted in an agreement to hire the client for a nurse’s aide position and award back pay. The facility also agreed to have ADA training for its administrators.

OLRS advocated for equal educational opportunities for students with disabilities

A student transitioning from school to work had accomplished the employment goals described in her Individualized Education Program. However, citing behavior issues, the student was relieved of the three job positions outlined in the IEP and restricted from all work sites for one month with no alternatives. OLRS negotiated with the school regarding the reinstatement of jobs, and the school’s failure to appropriately address behavior issues which led to loss of employment. The district contracted with a behavior specialist, a behavior intervention plan was developed and in school jobs were reinstated.

OLRS advocated for the provision of needed supports when people’s needs cross disability systems

A woman being served by both the developmental disabilities and mental health systems who was residing in a nursing facility had been served a discharge notice allegedly due to her behaviors. Placements being discussed were discharge to a shelter or to a behavioral unit in a nursing facility. This individual was not receiving any behavior programming from the nursing home or the developmental disabilities system. Her guardian had appealed the discharge notice. OLRS investigated and worked with the woman, her guardian, and the county board of MRDD to develop a plan for the woman to move into a new home under construction.

OLRS advocated for children and adults to receive assistive technology

OLRS helped a grandmother/ guardian obtain a new power wheelchair for her grandson/ward. The individual had twice been denied a new chair because his old chair had been repaired within the last year. However, it was ill-fitting, and the man’s legs were ulcerated as a result. OLRS worked with the individual and his grandmother, the guardian. A new power wheelchair was obtained, despite the state Medicaid agency’s reluctance to do so.

Advocacy on behalf of groups of individuals

A facility used tethers on several individuals at all times other than when eating, sleeping and releases, in response to a Medicaid citation that the facility was not doing enough to intervene with non injurious behaviors. OLRS investigated and worked with facility staff to discontinue restraints and assure safety by putting in place positive, appropriate interventions to address stereotypic, self-stimulatory behaviors that did no harm to the individuals or others.

OLRS learned from client and Major Unusual Incident Reports, known as MUIs, that security guards at hospitals in Ohio used pepper spray, stun guns, batons, steel handcuffs and inappropriate interventions when interacting with mental health consumers.

As a result of OLRS’ advocacy, the Ohio Department of Mental Health changed residential and private psychiatric hospital rules to prohibit the use of pepper spray, stun guns, batons, steel handcuffs. ODMH revised MUI reporting standards to include use of force: pepper spray, handcuffs, batons, stun guns. ODMH has instructed their hospitals to review all incidents involving the use of security. ODMH will now require a plan of correction from any facility that uses the prohibited devises. OLRS published results of its survey, "Security Oversight."

Systemic change

OLRS’ staff are members of statewide committees that impact the health, safety and rights of people with disabilities. OLRS staff participated on the MRDD Victims of Crime Task Force which delivered its recommendations and final report to the Governor addressing the criminal justice system’s treatment of people with mental retardation and other developmental disabilities.

OLRS’ Family Support Collaborative, a grant from the Ohio Developmental Disabilities Council, has introduced legislation to assure that supports and services for families who have children with disabilities are family-determined, efficient and effective. The Olmstead Task Force is a cross disability coalition of consumer organizations, advocates and families that have come together to address Olmstead rights issues, support community integration, and to advocate for the implementation of the Ohio Access Plan, the State’s Olmstead model. OLRS’ Protection and Advocacy for Individuals with Mental Illness (PAIMI) Council has received funding from the Ohio Department of Mental Health to establish and implement an advocacy Rights and Recovery Campaign.

Litigation

While no new class actions were filed this federal fiscal year, OLRS continued to protect individuals with disabilities through class actions filed in years past.

Voices Heard at PAIMI Council’s Rights and Recovery Campaign Kickoff

PAIMI Council members and staff from OLRS facilitated the day’s activities. The kickoff event was dedicated to Ellen Deacon, Ex-Officio PAIMI Council member and Manager of Consumer Advocacy and Protection at the Ohio Department of Mental Health. It was Deacon’s vision and drive that created the opportunity for the Rights and Recovery Campaign.

The event was the debut of the advocacy tools developed for the campaign. One unique product is a rights video produced specifically for people who are deaf/hard of hearing. To make it accessible to all, the video uses American Sign Language, voice-overs and closed captioning. The video was given to everyone at the event with the hope they would share it with local consumer organizations, providers, and everyone involved in the mental health system.

The other advocacy tools distributed at the event included:

• Rights handbook
• Rights and recovery web site
• Advocacy study report

The attendees’ passionate comments about advocacy and the current mental health system were compelling and persuasive. Partici-pants reinforced each others strengths and skills and many pledged to return to their communities as both self advocates and to advocate for others.

The PAIMI Council gave its first Excellence in Advocacy and Recovery Award to Sandy Stephenson, Executive Director of Southeast Mental Health Inc. Stephenson was recognized for her leadership in supporting client directed recovery and rights and adopting the PAIMI Council’s definition of Recovery.

Throughout the day, participants discussed their experiences. People said they did not know they had rights, and until they learned about rights, they received inadequate services. Some people said they were told they should not complain about poor or undelivered services because they were lucky to be getting any services at all.

People said they did not know there was a client rights officer or access to other advocates. Attendees who were deaf spoke eloquently about isolation and how mental health providers fail to communicate and appropriately serve them.

All the participants expressed a fear that poor community services make them vulnerable to repeated hospitalization. Several discussed the isolation and terror they felt during hospital stays and clearly stated that the hospital experience undermined their recovery process.

Other issues raised included a lack of insurance for mental health services, the complexity of various benefit systems, and employment. These concerns and other disability issues provided a foundation for a client driven advocacy agenda. This agenda will provide the participants and other mental health advocates a common agenda and a unified voice to improve mental health advocacy and services in Ohio. The advocacy agenda included:

• Employment (Medicaid Buy-in, Ticket to Work and Work Incentives Improvement Act)
• Family Support (Ohio Family Support Act HB 214, Custody Bill SB 192)
• Olmstead (The right to live in the community)
• Health Insurance (Mental Health Parity, HB 225)

The Rights and Recovery beat will go on! Through the PAIMI Council’s Leadership Training Institute, materials will be disseminated and training opportunities will be provided for advocates to use as they work to improve advocacy services in local systems.

The PAIMI Advisory Council advises OLRS on its PAIMI goals and objectives and provides input to OLRS from around the state on issues pertaining to mental health.

Ohio Legal Rights Service sponsored this event, in part, with funding from the Ohio Department of Mental Health, through a grant from the federal Center for Mental Health Services.

Ohio Network for the Chemically Injured presents

Prevention Convention

Addressing Indoor Air Quality/Sick Buildings & Related Issues

Sunday, August 15, 2004
Playhouse Square Center
Cleveland, OH

• Public’s first peek at the ProtectoZone-a prototype enclosure designed for a person who requires protection from harmful everyday chemical exposure
• Exhibits presenting safer choices and alternative products
• Presentations on:
  - Building materials
  - Cleaning chemicals
  - Mold
  - HVAC issues
  - Health effects of pesticides
  - Medical diagnosis
• Q&A/Roundtable: questions answered by panel of experts
• Entertainment: featuring humor, original music and short theater presentations that will provoke thought, create awareness and advocate for change

Tickets: Adults $6; students & seniors $4

For more information, contact:ONFCI, (440) 845-1888 or visit:www.gplcorp.com/ONFCI/indextoarticles.html

Voting Reform: Update

Unfortunately, in Ohio, voting reform appears to be at a stand still. Senate President Doug White and House Speaker Larry Householder established a Joint Committee on Ballot Security to hold hearings on Ohio’s pending implementation of HAVA. The Committee was asked to work expeditiously and thoroughly to make recommendations to the Secretary of State, the Controlling Board and General Assembly.

After eight, comprehensive public hearings between March 4 and April 7, the Committee released its report. Briefly, the items included:

• Amount proposed for voter education plan was excessive and not appropriately targeted. Recommended that leaders meet to determine an acceptable proposal to replace the one deferred.
• Require the Secretary of State (SOS) to hire an ADA Coordinator to ensure equal access to polling locations; and strongly encouraged the SOS to pursue any additional HAVA dollars to make polling sites more accessible.
• General Assembly should continue to examine issues related to mandated voter-verifiable paper audit trails in Ohio.
• Mandate that all elections systems in use after January 1, 2006 in Ohio must contain a voter-verifiable paper audit trail (VVPAT). Specifically, all Direct Recording Electronic (DRE) machines must be equipped with VVPAT. SOS shall conduct a new bidding process for machines that include VVPAT.
• If the SOS permits, county boards of election may proceed with conversion to DRE machines in 2004, and retrofit with VVPAT next year-at county expense. SOS shall consider using federal HAVA disability funds to lease one voting machine per polling place in the 29 counties that were scheduled to go forward in November 2004.
• Prior to the bidding process, the SOS shall develop state standards for a VVPAT-equipped DRE machine.

The goal of HAVA is to ensure that every eligible American has an equal opportunity to cast a vote and have that vote counted. HAVA does not mandate the use of DRE systems. It does require, however, that new voting systems avoid the errors and accessibility problems associated with older systems, such as punch cards.

Advocates in Ohio are urged to talk with their legislators about implementing HAVA as enacted, and provide disability and language minority access.

For more information on HAVA, visit: http://www.aapd.com

Register to vote!

Deadline to vote in the November general election is October 4, 2004.

Of course, you can’t vote if you’re not registered to vote. It’s a simple process. Simply fill out a brief form that you may obtain from any disability office, Bureau of Motor Vehicle Office, public library, county board of election office, or by contacting the Secretary of State’s Office: toll-free (877) 767-6446 or http://www.sos.state.oh.us/sos/voter

Join Ohioans in promoting HAVA

You may ask for additional copies to share with your community in libraries, churches, community centers, employment offices, retail stores, and other sites. As the sign-on list grows, we will post names to the OLRS website, and use the list to encourage legislators and the Secretary of State to ensure timely implementation of HAVA requirements.

Contact: AXIS Center, (800) 231-2947, axiscenter@aol.com

WHEREAS, the engine of any democracy is the fundamental right to vote privately and independently;

WHEREAS, the 2000 United States’ Census reported that almost twenty percent of Ohioans five years of age and older have a disability;

WHEREAS, it is critically important that purchasing new, secure voting equipment and software expand democracy rather than place any unnecessary limitations upon it;

WHEREAS, Ohioans with disabilities know that more must be done to improve the electoral process than just purchasing new voting equipment and software;

WHEREAS, there is a consensus among Ohioans with disabilities that greater accessibility is of fundamental concern, which raises particular questions about voting equipment and the location and accessibility of polling places;

WHEREAS, the federal Americans with Disabilities Act (ADA) and the National Voter Registration Act guarantee access to voting and voting equipment for people with disabilities;

WHEREAS, the recently enacted Help America Vote Act (HAVA) provides funding to advance the voting rights of people with disabilities, and their participation in federal, state, and local political processes;

THEREFORE, be it resolved that:

• the Secretary of State will establish and maintain an election system that provides full accessibility to people with disabilities;
• polling places, including the parking area, path of travel, entrances, exits, restrooms and voting areas of each polling place, be accessible to individuals with disabilities in a manner that provides the same opportunity for access and participation as for other voters;
• Ohio use the same standards for accessibility of buildings by people with disabilities as in the Americans with Disabilities Act Accessibility Guidelines (ADAAG) and the Department of Justice’s Checklist for Polling Places, including adherence to accessibility standards for new polling places;
• the Secretary of State will work in partnership with the disability community to survey Ohio’s polling places to assure accessibility and compliance when deficiencies are found;
• the Secretary of State and local boards of election will accept complaints regarding inaccessible polling places, investigate those complaints, and produce a report that includes recommendations for the corrective actions that need to be taken to make the polling places accessible to individuals with disabilities;
• the Secretary of State will engage in an aggressive "Register to Vote Campaign" that includes extensive outreach to people with disabilities;
• the Secretary of State will promote the need for individuals with disabilities as poll workers and precinct election officials; local boards of election actively will recruit individuals with disabilities as precinct election officials and poll workers;
• the Secretary of State will establish a voter education program for people with disabilities on how to use new voting machines; and
• the Secretary of State will establish a training curriculum for poll workers that includes criteria for supporting people with disabilities when voting and includes using appropriate etiquette and "people-first" language to assure that individuals with disabilities are treated with respect.

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Organization

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Write for readers

Part 2 of 3 parts

Write for Readers emphasizes 12 main writing points. In this issue, we feature points 3-8. All 12 points are:

1. Be brief; get to the point.
2. Use headlines with verbs.
3. Use unbiased, people-first language.
4. Make paragraphs short.
5. Be complete.
6. Make your writing visually appealing.
7. Use the "you" point of view.
8. Have available a good grammar book and a recent dictionary.
9. Proofread.
10. Write to express, not to impress.
11. Write mostly in active voice.
12. Stay consistent.

Now we continue with the 12 ideas to give your writing more punch...

3. Use unbiased, people-first language.

• Recognize a person’s right to self-esteem, that is, their right to be thought of first as a person (many call this idea "people first" language).

  Example: Say, "The man, who is blind" instead of "The blind man." The idea is that you mention the person first; then you make any needed mention of a disability or other difference. Unless it is important to the idea you’re discussing, don’t mention the difference.

• Be accurate without being judgmental. For example, you should say a person "has a disability" rather than "suffers from a disability." Likewise, a person "uses a wheelchair" rather than "is confined to a wheelchair."

  Check the table below for a few of the recommended terms related to people with disabilities.

• Use unbiased language. For many years it was acceptable to use the word, he, as a universal word for a single human being, male or female. Now we must be more gender-conscious, or we will offend many readers. It is acceptable to use the words, he or she, instead of just he. It is also acceptable to make he plural, so you can use the pronoun, their.

  Example: "First you ask him or her the list of questions, and then you escort him or her to the sidewalk."

  If him or her appeared only once, the sentence would be fine. But it’s awkward when repeated. Use a plural, and it sounds better:

  "First you ask them the list of questions, and then you escort them to the sidewalk."

  Make paragraphs short.

  If you’ve opened an old book recently-one that was written in the 1960s or earlier-chances are you were overwhelmed with long paragraphs. The rule for writing used to be that you went to a new paragraph only when you wanted to start a new thought. And new thought often meant an entirely different subject.

  Now we know that readers comprehend much more when writing is in short paragraphs. Readers can scan more easily, they can find a crucial section to reread it more easily, and they can remain better energized to finish reading the item.

  Limit your paragraphs to ten typed lines. Paragraphs should:

  • Contain a single thought as a manageable chunk of a larger idea.
  • Stress the main part of the thought first.
  • Vary in length-as short as one sentence to as long as 10 lines.

  5. Be complete.

  Include 5ws and an H. These are Who? What? Where? When? Why? How (or how much)? By remembering to cover each of these areas, your message will be complete. Ever read an enticing account of an upcoming event, only to discover that the writer left out the place or time? Write your item, and then reread it to make sure you’ve covered 5ws and an H.

  6. Make your writing visually appealing.

  • Use bullets and lists. Visually organize your text to help readers categorize and understand. Bullets and lists allow ideas to appear simple and understandable.
  • Use a type size that’s readable. Type is measured in points (not inches or centimeters). Most publications use 10-point or larger type for text. If you have an older audience or are using "thin" type, choose a larger type size. Beware! Different typefaces can look larger or smaller yet be the same point size.

  Smaller type is easier to read when you increase space between the lines. Those spaces are called leading (pronounced LEDing)

  • Use a type face that’s readable. As a general rule for body text, use type that has "tails" or "feet" because it helps move readers’ eyes across the page. You may use type without "tails" or "feet" for headlines.
  • Type in columns no wider than 4.5 inches for best readability. It becomes tiring and does not look inviting to have long lines of type across a page.

  • Use heads and subheads. Headings and subheadings help your readers see the big picture quickly and to grasp the details they want to read carefully.
  • Include charts, graphs, and pictures, if possible. Readers look at them first. So if you want to emphasize part of your content, figure out a way to convey it visually.

  7. Use the "you" point of view.

  Speak directly with readers by using the word, "you". It’s more conversational and informal, and it leads to better reader rapport.

  8. Have available a good grammar book and a recent dictionary.

  All dictionaries are not alike. Recent dictionaries will contain more of the new words that are now widely accepted, such as e-mail, Internet, cellular phone, daylight-saving time, Medicare, and Down syndrome. They will have the latest countries of the world and contain newer expressions that are well accepted.

  Grammar books are not all alike, either. Choose a grammar book that was published recently and is easy for you to use.

  American usage changes. Some old taboos are now acceptable and even encouraged. For example: It is now often acceptable to end a sentence with a preposition, and it is fine to start a sentence with a conjunction, such as but or and.

  In our next issue, we’ll include writing tips 9-12. Until then, try practicing the ideas we’ve published here.

  AHEAD seeks stories and art from college students with disabilities

  The Association on Higher Education and Disability (AHEAD) is soliciting articles and artwork for a book about first-year college students with disabilities. The book will educate prospective college students with disabilities, parents, university personnel, and transition specialists through the voices of current and former students.

  Fictional short stories, essays, poetry, photographs and art about college experiences are welcome. Submissions may be written or typed, signed on videotape, or spoken on audiotape.

  There is no age limit. Submissions may have multiple authors or artists, as long as one of the people submitting the work has been a college student with a disability.

  Deadline for submissions is June 1, 2004. Requests for extensions must be made in writing by May 20, 2004.

  For more information,
  visit: www.ahead.org
  or call: (781) 788-0003 v/tty.

  Resources & Announcements

  ADA Basic Building Blocks

  An introductory web-course on the Americans with Disabilities Act of 1990 that explores the legal requirements and spirit of the ADA is available free online. Content is self-paced and organized into 12 topics that should be studied in order. Visit: www.adabasics.org

  PAS in the Workplace

  For some people with disabilities, Personal Assistance Services (PAS) may be needed to successfully maintain gainful employment. This publication provides a definition of PAS; information about using PAS to accommodate people with sensory, cognitive, mental health, and motor impairments; a discussion about PAS and the ADA; and a list of resources. Visit the Job Accommodation Network website: http://www.jan.wvu.edu/media/PAS.html

  NetWellness offers consumer health information

  April is Minority Health Aware-ness Month in Ohio. Medical research is finding that treatment of some diseases differs in various ethnic groups. Understanding what these differences are can have a direct impact on your health. To learn more about this and other health issues, visit: www.netwellness.org

  Healthcare for Children on the Autism Spectrum: A Guide to Medical, Nutritional, and Behavioral Issues

  -Fred R. Volkmar, M.D. & Lisa A. Wiesner, M.D.

  While a child with autism can be as healthy as any other, autism creates challenges, such as sensory issues and communication difficulties that become a factor when considering almost all healthcare decisions.

  With this guide, parents will learn to better recognize and understand symptoms and behaviors, evaluate medications or alternative therapies, and communicate with healthcare professionals. Each chapter ends with a helpful section of questions and answers.

  Rick Schostek, Past President Autism Society of America-Central Ohio Chapter, has a 15-year-old son with autism. His review of the book includes, "An up-to-date reference that covers a variety of medical issues in an understandable format. Contains clear and useful guidance across a range of ages and across the autism spectrum. Begins with an excellent overview of the spectrum and proceeds from diagnosis through adolescence."

  376 pp. $21.95 plus $4.50 S&H. Woodbine House, 6510 Bells Mills Rd., Bethesda, MD 20817; (800) 843-7323; www.woodbinehouse.com

  Universal Designed "Smart" Homes for the 21st Century

  -2004. Charles Schwab Architects

  The 72 home plans in this book are based on universal design principles and are fully accessible and designed to work for people of all ages, sizes and abilities. Blueprints are ready for order and use.

  This is reportedly the first stock home plan book that combines universal design, energy efficiency, and green building practices, as well as optional safe rooms in every plan.

  Thirty of the plans are less than 1500 square feet and are designed for narrow lots as well as retirement housing communities. The remaining homes are mostly less than 3000 square feet; some include in-law additions and duplexes.

  Includes room-by-room descriptions of features and benefits that also can be used as guidelines in making home modifications.

  122 pgs. Soft cover. $31.45 includes S&H. AXIS readers receive a 10% discount: $28.30; Schwab Publishing Co., PO Box 533, Moline, IL 61266; (309) 792-4599; www.universaldesignonline.com

  Consumer Direction Tool Kit

  -Collaborative effort of the National Association of State Units on Aging and the Home and Community-Based Services Resource Network. Project is funded in part by The Robert Wood Johnson Foundation and CMS.

  The Consumer Direction Tool helps states and their citizens review policies and programs. It asks whether programs help people to make their own choices about services and the people who provide them. The tool will help start discussions about choice and control in your state.

  Everyone can use this tool to evaluate services in Ohio: consumers, advocates, state agency staff, legislators and providers.

  This tool kit/workbook will help you understand the differences between consumer choice and consumer direction. It also provides guidance for discussion with other consumers and policy makers and will help build a "consumer direction agenda for reform."

  The tool has four sections representing the principles of the ADA: opportunity, meaningful participation, independence, and financial security and other safeguards. Each section begins with a question, followed by eight or more statements. Responding to the statements allows you to make a judgment about how well your state is doing in each area.

  The tool lets you look at programs for people of all ages. It includes broad issues that may impact consumer direction: funding, worker shortages, people coming "out of the woodwork," and fears for consumer safety; recommends specific strategies be developed for each identified barrier.

  A glossary includes key terms used in the tool.

  Available free from AXIS Center, 4550 Indianola Ave., Columbus, OH 43214; (800) 231-2947v/tty; axiscenter@aol.com

  Effective Presentation Techniques How to develop and deliver a successful presentation

  -AXIS Center for Public Awareness

  Are your presentations dull and boring?

  Can your audience read your power point slides?

  Do your knees wobble and does your voice get jittery?

  If you answered "yes" to any of these questions, then you need this book.

  Effective presentations convince or persuade people to take action, inform or educate an audience, create goodwill, or do a combination of these things.

  This 40-page guidebook presents techniques and tips for developing and giving successful, effective presentations.

  Information is written in an easy-to-follow, conversational style, accompanied by humorous illustrations.

  Topics include:

  • Knowing your audience
  • Types of presentations
  • Room set-up
  • Props
  • Handouts
  • Microphones

  One valuable section discusses choosing and creating effective tools:

  • Overheads
  • Flip charts
  • Chalk boards
  • Slides
  • Computer images
  • Video

  40 pgs. Soft cover. $3.00 includes S&H. AXIS Center, 4550 Indianola Ave., Columbus, OH 43214; (800) 231-2947 v/tty; axiscenter@aol.com

  All resources listed in DD Quarterly are available from AXIS library. (800) 231-2947 v/tty axiscenter@aol.com

  ODDC calls for nominations Elsie D. Helsel Advocacy Award

  Each year, DD Council selects an Ohioan to receive its advocacy award honoring an outstanding advocate who has worked actively in support of improving the lives of people with developmental disabilities and their families.

  Council named its award for Elsie D. Helsel, a lifetime advocate for people with disabilities. Helsel and Elizabeth Boggs wrote the DD Assistance and Bill of Rights Act and secured its passage. Helsel was appointed as the first chair of the Ohio Developmental Disabilities Council and has served as a member for more than 25 years. She has conducted research, written grants, educated legislators, mentored professionals, and served on state and national boards and committees.

  A $500 award will be presented to the honoree September 8 at DD Council’s Annual Conference in Columbus.

  Nomination procedure

  People with disabilities, family members, advocates, and others are eligible for the award. Nominations must include:
  • A narrative of not more than 250 words, explaining the nominee’s advocacy efforts and why the person should be honored;
  • A biography of not more than two pages; and
  • Contact information for the nominee and the person making the nomination.

  Letters, photographs and articles may accompany the application.

  Nominations must be received by July 1, 2004.

  For complete procedures, visit: ddc.ohio.gov, or contact: ODDC, (800) 766-7626, (614) 466-0298 fax.

  DD Quarterly is produced by AXIS Center for Public Awareness.

  DD Quarterly is available in large print and on audiocassette, upon request.

  Please pass this copy to others who could benefit from it. If you, or someone you know, would like to be added to the mailing list, please call AXIS.

  Toll free in Ohio, v/tty:
  (800) 231-2947

  In central Ohio, v/tty:
  (614) 262-8124

  Fax: (614) 267-4550

  E-mail: axiscenter@aol.com

  AXIS STAFF
  Sue Willis, project director
  Vince McGuire, photographer
  Kelley Femia, designer
  Beth Kramer, writer/editor
  Shari Veleba, writer
  Rev. Dan Young, writer
  Kim Ryan, audio recording
  Joyce Talkowski, assistant
  Donna Kinney, assistant

  Copyright 2004. Content may be reprinted upon request.

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