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DD Quarterly Spring 2006
Circulation 21,377
Publication of the Ohio Developmental Disabilities Council bringing disability issues and accomplishments to the attention of Ohioans.
Personal relationships build influence
DeWine urges working on campaigns or running for office
Editorial note: AXIS Director Sue Willis recently had the opportunity to talk with one of Ohio’s U.S. Senators, Mike DeWine, about issues of interest to readers of DDQ. The following article summarizes their conversation. Future issues of this publication will feature interviews with other policymakers.
What do you feel is the biggest difference between being a U.S. Senator and being a senator here in Ohio?
DeWine: Well, I guess you start off with a much bigger constituency. Instead of one-third of the state, you’ve got the entire state. One of the things I love about being a United States Senator from Ohio is this is such a diverse state. You’ve got, literally, a little bit of everything in this state… from Appalachia, to some of the greatest cities in the country, to a lot of suburban [areas]. It’s a real mix and mixed economy.
I imagine living in Washington is much different than living on the farm.
DeWine: It is. We spend part of the time in Washington. We have a house here in Greene County, and a house in northern Virginia. So it’s kind of two lives, really, back and forth.
We know that you are a member of several important committees in the Senate. As a member of the Judiciary Committee, what’s your position on the Americans with Disabilities Act?
DeWine: I was in the House of Representatives when we passed the Americans with Disabilities Act. We’ve seen, since that time, what it has done. We’ve seen a couple Supreme Court cases that I don’t like…that I’ve been vocal about… that have restricted it. I talked about that, frankly, in the Supreme Court nominations of Judge Roberts and Judge Alito. I used the opportunity that I had to question both of them to say that I didn’t like the decisions and I thought basically what the Court was doing, in a sense, being a secret legislator. In other words, taking the judgment of the court and imposing it over the Congress.
My staff and I are constantly trying to review and see if there’s anything else that frankly can be done. I think one of the biggest challenges that’s faced by people with disabilities is employment and lack of employment opportunities.
And, we’re trying to work in that area to try and improve those opportunities. In a job training bill that I was involved in a few years ago... one of the things we tried to do was make sure we worked with the community so that the bill was written correctly so that people with disabilities had the most opportunity, as far as job training. In a sense, that we continue to have some dedicated funds for people with disabilities but also allowed them to use other facilities as well for job training… open all avenues for job training. We tried to do that when we crafted the bill. That’s what counsel I got from people with disabilities that I talked to that wanted us to do what we could when we crafted that bill.
We also recently had a bill with Senator Ben Nelson [Nebraska] to try to improve and give some preference in regard to some contracting jobs with the IRS. We just passed [an amendment to the bill] that is basically for jobs we have set aside for people with disabilities with regard to telemarketing with the IRS. We’ll get this bill passed.
Continuing along the lines of employment...Congress has passed initiatives allowing states to have programs to increase employment of people with disabilities. One of these is Medicaid Buy-In. But Ohio has not implemented this program. What do you think we, as a large population of people with disabilities, could do to get MBI passed in our state?
DeWine: I think it’s like anything else. I think it is a question of information. I don’t think that the general public [knows] that there are so many people who want to work but have some barriers that prohibit that. They’re either under employed or unemployed because of those barriers. And removal of those barriers would allow them to work and be full participants in the American Dream.
And, that’s just a message those of us in public office have to try and get out. It’s also a message that everyone else who understands the issue has to try to get out.
You think we need to do more?
DeWine: We all have to. I mean, look, we obviously are not communicating enough. We’re not getting the message out, or else, you know it would have been changed in Ohio before now.
We’ve got to bring it back to individuals. In my experience in politics, in over 30 years, when you talk in the abstract, it doesn’t do any good... But if you can relate it to this individual person and make it personal, and they can see that person…and they know that person wants to work, and hear that person… and that person says, ‘I want to work, and here’s what is stopping me from work. Remove that barrier, and I can go to work. I can be productive.’
So personal stories have an impact? They make a difference.
DeWine: Personal stories… that’s why people read People Magazine. I mean, that’s why people go to movies, why we listen and watch TV… why we read books. So anecdotes, I think, is the way to drive it.
Senator, you are the first Ohio senator in over 60 years to serve on the Appropriations Committee. What drives your decisions about what to use the money for and how to distribute our tax dollars?
DeWine: We try to prioritize money in areas that we think will really make a difference, and where someone else is not putting the money. Or where our money can jump-start something, or make something happen that wouldn’t happen but for us putting it in. We prioritize children; we prioritize people who are poor, or for medical care. Those are some of the areas that are prioritized. We prioritize people to help people have better opportunities.
You recently voted against the Budget Reconciliation Act, but you supported the Family Opportunity Act, and you supported Money Follows the Person—that were both in that act. So, why did you vote against it?
DeWine: I thought the budget was a very hurtful budget. Not enough money for education. Not enough money for children. Not enough money in the area of cuts, really...So those were the reasons. I think it’s going to be a budget that is going to be very difficult here in Ohio and we’ll see the ramifications of that budget in the months ahead.
You mentioned this a bit earlier, but how do you deal with the frustrations of knowing that an initiative might be right, but it’s failing.
DeWine: Well, I get around that, because I’ve found in the Senate, there’s always another day... And you have to be persistent and patient, which is somewhat contradictory, but the people who get ahead and get things done…the people who can accomplish things…are people who don’t give up, and they keep coming back, and keep coming back. Eventually, they get it done.
Some of the big ideas we’ve seen in this country, whether it be civil rights, disability rights, whatever right we’re talking about… some of them have taken 10, 20, 30, 40, 50 years...and some people who have been proponents of them have not even lived to see them get passed. So you have got to take the long view. As much as we would like to see something get passed in a year or two years, sometimes you just know that’s not going to happen.
For example, Money Follows the Person—to have that fully done, is a long process. And we’re going to break through this year, and whether that’s going to be implemented to the fullest extent we want, it may take awhile.
What are a few of the initiatives you want to continue working on?
DeWine: Well, children’s health issues; I’ve worked on a lot. A big issue that Ted Kennedy and I worked on was FDA [Federal Drug Administration] regulation of tobacco. FDA regulates every other product, but doesn’t regulate tobacco. That’s an issue whose time has come, but we haven’t been able to convince the Congress yet. If we could get the FDA to regulate tobacco, we would cut down on, ultimately, the amount of underage smoking, and the marketing of these flavored cigarettes and things that specifically appeal to young kids. We’d save a lot of lives. Well, we have failed, so far, to get that passed, but we will. It may be a year...it may be ten, but eventually it will pass because it makes so much sense.
And will you continue to work on Money Follows the Person?
DeWine: We’ll continue to follow that because it clearly has a ways to go. The whole area of employment for people with disabilities is something I’m very interested in because it is such a huge issue. The public has to really understand. My staff and I are looking for opportunities to expand in that area.
Several ways to approach it, one is in job training, but the other is through the federal government—a major contractor; and maybe putting more emphasis on those contracts. What Nelson and I did was a very small beginning with the IRS. It won’t even happen until the next contract goes out. So we’ll see how it works. But you know, having some of these call operations being done by people with disabilities is something that could supply a lot of jobs and could provide a lot of opportunities and it’s a pretty easy thing to do. Not that the jobs are that easy, particularly, but it’s pretty easy legislatively to do, and doesn’t cost any money, and it can get done.
So we kind of have to look for those opportunities. And I’m going to continue to work on other areas. I’ve been very much involved in mental health issues. I wrote a bill called the Mentally Ill Offender Treatment Crime Reduction Act, which the president signed in 2004. That idea was to put the mental health community together with the law enforcement community and have them working together. What I found, when I was a county prosecutor, is that a lot of time you get the same people coming through the court system time and time again. Well, they had mental health problems, that’s why they were coming through. And so what you needed to do is bring in the mental health people and bring the law enforcement people in, and get them working together.
Those are some of the things that I’ve worked on in the past and I’ll be continuing.
Ohioans with disabilities have been trying to build relationships with the legislature. It feels like we don’t have much power and it’s very frustrating to see the infighting and the politicking going on. What would you suggest to those of us who might want to make our voices stronger?
DeWine: I think there are a lot of avenues to do it. Certainly, one is to run for office. And, I always advise people to jump in, at any level—whether it’s the county level or the state level or the local level.
The other is if you don’t want to be the candidate yourself, get involved in someone else’s campaign. Candidates are always looking for someone to help them. Help them on issues; help them on ideas, phoning, helping with door-to-door, all kinds of work. Just volunteer. People are always looking for help, particularly if they don’t have to pay you.
Get involved and you’ll be right in the campaign. You don’t have to pick the guy who’s running for president. Pick somebody who’s running for county prosecutor or somebody who’s running for state legislator. They’ll welcome you with open arms. Then you’re in, and you’ll know that person. That becomes that personal relationship.
What was your first office?
DeWine: First office was county prosecutor. I beat an incumbent county prosecutor. And then four years later, I beat an incumbent state senator. Then I ran for the Congress, and ran in an open seat, and served eight years in Congress. Then I was elected lieutenant governor. Then I ran for Senate and lost once, and then I ran two years later and won. So I’ve been in the Senate now for 11 years.
I’ve been in politics for 30 years. I started when I was 29 when I was county prosecutor. A lot of people start as township trustee…or something else. There are a lot of offices out there.
I think what people are looking for in a candidate is someone who is earnest and personable and who will connect with people and talk with people. And there’s no substitute for personal contact. I think that goes a long way, particularly in a small area.
Sounds like that’s a way to begin making our voices strong.
DeWine: Absolutely. I think it is. What I have found is there are several different kinds of people who are interested in politics… there’s a group of people who want to run for office, and there’s another group of people who don’t want to run for office, but want to be involved. There’s some cross-overs, but most people who say ‘I don’t want to run for office,’ get involved, and volunteer, they work on a campaign, or they get paid, or whatever Then there’s other people, who want to run...You need both. Because that’s how you have influence.
It’s personal relationships, knowing the candidates, being candidates...that’s how any organization, any group has influence. It cuts across party. You should be involved.
Thank you very much, Senator. I hope your ideas and suggestions will encourage our readers to get involved.
Making Medicaid Buy-In a Reality in Ohio
Wednesday, April 26, 2006
10 am – 4 pm
Riffe Tower, 31st Floor
Columbus, OH 43215
After years of effort, a Medicaid Buy-In (MBI) bill is right around the corner. However, much work will still need to be done to get the bill passed and implemented.
Advocates are invited to attend this free event to learn about the bill and how to teach legislators what it will do for people with disabilities.
At this event, join people with disabilities, family members, and others in learning how to contact legislators and make MBI a reality!
Registration is required. For more information, contact AXIS, (800) 231-2947.
Sponsored by The Ohio Olmstead Task Force
Former Congressman Coelho visits Columbus, says fight is on to redefine ADA: personal stories are key
Former U.S. Congressman Tony Coelho visited Columbus February 17 and stopped by the Epilepsy Foundation of Central Ohio and met with its board and staff to discuss the ADA and ways in which the foundation can assist its chapters.
An author of the Americans with Disabilities Act (ADA), Coelho represented California in Washington, D.C. for ten years. He now serves as board chairman of the Epilepsy Foundation of America, based in Landover, MD.
Coelho, 64, has had epilepsy since his early teens as a result of an auto accident, he said.
On the state of the ADA, and the efforts by some to derail it, he said the ADA “has been exceedingly successful. It is the law of the land, and we are making progress.” While the U.S. has the capacity to lead in such endeavors, though, it also has the ability to retreat a bit, he noted.
Of the nine major ADA cases that have come before the U.S. Supreme Court in recent years, five have been favorable and four have been unfavorable—and the decisions have been close votes, he said.
“We are now trying to redefine the ADA to include those disabilities that the court has kicked out,” he said. Epilepsy and chronic illnesses such as asthma are not covered by the ADA. “The Court has been pretty good in telling the states to enforce the ADA, but when it comes to ADA and the workplace, it’s been awful.”
“We need to address those disabilities that have not been included in the workplace,” he said.
“There has been a reluctance to address the ADA in Congress...but we are now pursuing it. We’re trying to convince people from both parties to support it,” he said.
“I take the view that I want to get this (ADA) redefined. If they want to repeal the ADA, then I say, let’s go for it, let’s have the political fight. The gloves are off, we’ll have the fight if that’s what it takes,” he said.
Changes, though, can’t be imposed from the top, he said. They must come from the grassroots. That is why it is important for people with disabilities to register to vote, go to the polls, and meet with their elected officials.
“Under our democracy, the squeaky wheel gets the grease,” he said. “If you register to vote and you participate in the electoral process, every elected official is interested in what bothers you,” he said. “If you don’t register to vote, and do not take part, the officials generally don’t take an active interest in what bothers you. Whether that’s right or wrong, that’s reality.”
Coelho prefers to empower citizens with disabilities with the responsibility of educating their elected officials rather than expecting or assuming that Congress would automatically seek out disability-related information.
Local visits to legislators are effective, he said. “When people visited me in my local office, I paid attention. If you meet locally with a Congressperson, it has an impact.”
Personal stories are key. “If you tell your story and it hurts you and you cry, that’s okay,” he said, because it shows the impact that disability, stigma and unawareness have on your life.
Nancy Brantner, Epilepsy Foundation of Central Ohio executive director, said Coelho’s visit was important. “Tony stopping by helps solidify the relationship between the national association and local, and also brings the whole picture together of what’s happening with epilepsy. As a result of his visit, we’re going to be more vocal about what we’re doing,” she said.
Coelho was in Columbus to deliver the keynote speech at Ohio State University’s Moritz College of Law during a conference on disability and the law.
National Mental Health and Deafness Conference
BREAKOUT 2006: Cultivating Recovery
June 15-17, 2006
Columbus, OH
A biennial conference that brings together a variety of professionals who seek to improve the mental health services for people who are deaf, hard of hearing, or deaf-blind. Presentations will address the issues and concerns of direct service personnel and consumers.
For more information, call toll-free v/tty (877) 781-6670 or e-mail vwalker@c-s-d.org
MRDD Month celebration provides education and call to action
—Robert Jennings, ODMRDD
“Everyone belongs in the political process” was the theme for a rally at the Ohio Statehouse on March 9 to kick off the celebration of March as Mental Retardation and Developmental Disabilities Awareness Month. Individuals with developmental disabilities, their families, advocates and providers gathered to demonstrate that the disabilities community is a viable voting bloc and to learn how to become more active in the political process.
“What better place to voice our theme, ‘Everyone belongs in the political process,’ than in the heart of out state government, the Statehouse?” said Lon Mitchell, executive director of Ohio Public Images.
“If people with disabilities, our families and our friends all voted, we would have the largest voting group in the nation,” said AXIS Director Sue Willis, one of the featured speakers at the rally.
She suggested several steps to promote getting out the vote.
- Make voting a priority in our organizations. Include voting as a part of our mission statements and goals.
- Make sure everyone is registered. Repeatedly ask people if they are registered to vote, especially if they have moved.
- Develop an interest in the political process. Volunteer to work on political campaigns.
- As we get closer to an election, remind people to vote. Include re-minders on your work or personal answering mach-ines. Put a statement at the end of all your e-mail messages. And include a reminder to vote on the agenda of every meeting.
Kenneth Ritchey, Director of the Ohio Department of MRDD, encouraged those attending to meet personally with their state legislators. “Let them know what your concerns are,” he said.
Among the legislators who attended the rally was District 51 State Representative Scott Oelslager who presented a proclamation commending MRDD Awareness Month. It noted that “despite the increasingly effective methods of care available for people with disabilities, a lack of public awareness and understanding often makes life more difficult by denying opportunities and imposing unnecessary restrictions.”
The purpose of MRDD Awareness Month in March is to increase the public’s awareness and understanding of people who have mental retardation or other developmental disabilities so that these citizens will have increased access to social and economic opportunities.
As this year’s theme suggests, everyone, including people with developmental disabilities, can vote, volunteer, be a neighbor, work, and be a friend in our communities.
Groups meet and form nonpartisan coalition to promote registration and voting by Ohioans with disabilities
Twenty-seven organizations that advocate for people with disabilities met in Columbus Feb. 21 for a day-long voting conference intended to build power for Ohioans with disabilities.
Tentatively known as the Ohio Disability Vote Coalition, the group of agency staff members and directors seeks to register more Ohioans with disabilities to vote, educate them on the issues that affect them, encourage them to meet with elected officials to express concern about the issues, and urge citizens to exercise their right to vote during elections.
The current project builds on similar efforts started in 2004 to strengthen the electoral impact of Ohioans with disabilities. At the recent meeting, the group created a mission statement that will be voted on at its next meeting to be scheduled soon.
“I am passionate and committed to making this happen in Ohio,” said Sue Hetrick, director of public policy and advocacy for the Ability Center of Greater Toledo. “It’s going to happen in Ohio.” Sue Willis, director of the AXIS Center and Hetrick, developed the conference.
Kelly Anthony, senior field organizer with the American Association of People with Disabilities (AAPD), based in Washington, D.C., facilitated the group’s strategy session.
Anthony said that 85 per cent of the population of people with disabilities are unemployed and underemployed, and two-thirds of the population live below the poverty level. “The Americans with Disabilities Act (ADA) changed some things, but has it changed enough?” she asked attendees. “Being visible doesn’t necessarily equate to being powerful.”
Historically, Anthony added, people with disabilities have been divided and disregarded by elected officials. “Divide and conquer. It’s the oldest trick in the book,” she said.
Ohio’s coalition and several other states’ voting groups will join AAPD’s Disability Vote Project (DVP) to establish electoral power for the disability community. DVP is working to build a nonpartisan, consistent and identifiable bloc of voters with disability interests.
Many national organizations, who have demonstrated the ability to organize coalitions and raise funds are joining this national campaign. These include: Paralyzed Veterans of America, Easter Seals, National Association of Councils on Developmental Disabilities, National Association for the Deaf, and the National Disability Rights Network.
To add your organization to the Ohio Disability Vote Coalition, contact Sue Hetrick, (614) 575-8055, shetrick@abilitycenter.org or Sue Willis, (800) 231-2947 v/tty, axiscenter@aol.com.
Primary Election Day is Tuesday, May 2, 2006. The deadline to register to vote in the primary is: April 3, 2006.
Mammography screenings available to women with disabilities through federal programs
Federal programs operating in Ohio have made it possible for women with disabilities to obtain low-cost or no-cost mammograms that have the potential to save their lives.
According to Kathleen Korosi, quality improvement coordinator of Ohio KePRO, the quality assurance overseer for Medicare, women with disabilities neglect their breast health by not having mammograms that could detect deadly cancers.
Of women aged 52-69 receiving Medicare benefits, 52% of women with disabilities had mammograms in the past two years, while 61% of women without disabilities had the exam.
The Ohio Breast and Cervical Cancer Coalition, of which Korosi is a co-chair, has made it a priority to educate women with disabilities on the importance of mammograms. The coalition also reaches out to providers and physicians, in an effort to educate them on the topic of breast health and to reduce attitudinal barriers toward women with disabilities, she said.
“It’s a matter of making sure everyone is on the same page,” she said. “If a physician doesn’t order a mammogram, the patient won’t think it’s important.” Physicians often focus on a woman’s primary disability and forego breast exams, she said.
Mammograms for Medicare recipients
Korosi said women with disabilities aged 40 and older who receive Medicare benefits qualify for one mammogram per year with no Part B deductible, and those aged 35 to 39 are eligible for their initial “baseline” mammogram, the test to which all subsequent breast exams are compared.
Women receiving Medicare may receive the test at no charge or may have to pay a small co-pay, depending on location, Korosi said.
Women with disabilities should be proactive as they make mammography appointments by asking if a facility and its equipment are accessible. They should mention their disability and suggest that a little more time might be needed for the exam, Korosi advised.
Women who use wheelchairs should ask if the mammography equipment can lower to 24 inches from the floor, has a tilting C-arm, and if a positioning wheelchair with locking wheels is available, or if their own wheelchair can be used during the exam. A woman who is deaf may request an interpreter, she noted.
Usually, the most accessible mammography locations for women with disabilities are hospitals and stand-alone clinics, she said. Mobile units are not; they have steps and no on-site radiologist to immediately view the film to see if the test needs to be repeated, she added.
If a patient has had a mammogram before, she should let the technician know what positioning proved successful in the past as far as helping obtain proper positioning for the exam.
Ohio Breast and Cervical Cancer Project serves women without insurance
Women aged 50 and older—including those with disabilities—with incomes up to 200% of the federal poverty level and who do not have health insurance, qualify for a free mammogram through Ohio’s Breast and Cervical Cancer Project (BCCP). The program has existed through federal law and funding since 1993.
BCCP patients younger than age 50 do not qualify for a free mammogram unless a clinical breast exam detects a breast abnormality. The BCCP program examinations also include pelvic exams, PAP tests, clinical breast exams, and diagnostic work, said Laura Sefcik, program director of BCCP at the Ohio Department of Health.
“Breast cancers, along with other cancers, are very likely to be cured if they are found at an early stage. The earlier you find a cancer, the more likely you are to survive it,” says Sefcik.
“In our contracts, providers must make a reasonable effort to have accessible equipment for people with disabilities,” she said.
Women seeking exams may call one of 11 regional BCCP offices. If they qualify, they are referred to a physician or center in their area. BCCP is linked with 700 providers throughout Ohio.
Each region has space available for new patients, but capacity changes on a daily basis, so women need to call and ask about appointments, Sefcik said.
For more information about BCCP, visit: www.odh.ohio.gov; email BHPRR@odh.ohio.gov; call (614) 728-2177; fax (614) 564-240.
To contact Ohio KePRO, visit: www.ohiokepro.com; email kkorosi@ohqio.sdps.org; call (216) 447-9604, ext. 2140; fax (216) 447-7925; 5700 Lombardo Center Dr., Suite 100, Seven Hills, OH 44131.
News from Ohio Legal Rights Service (OLRS)
Ohio Legal Rights Service
8 E. Long St., Suite 500
Columbus, OH 43215-2999
Toll-free: 1-800-282-9181
Local: 1-614-466-7264
TTY toll-free: 1-800-858-3542
TTY local: 1-614-728-2553
Fax: 1-614-644-1888
www.olrs.ohio.gov
http://olrs.ohio.gov
OLRS advocates for access to local county boards of MRDD
During the 2005 federal fiscal year, Ohio Legal Rights Service (OLRS) advocated for 38 individuals who were denied access to, or were losing services from county boards of mental retardation and developmental disabilities (MRDD). In these cases, the individuals were challenging the eligibility procedures established by the state and administered by the county boards.
OLRS has seen a considerable increase in this type of case over previous years. While any number of reasons could be given for the increase in eligibility cases, at least one contributing factor is the numerous service and policy changes to the MRDD system.
The Children’s Ohio Eligibility Determination Instrument and the Ohio Eligibility Determination Instrument (C/OEDI) were developed in 1992 to standardize state-wide eligibility procedures. These instruments are used in every county board of MRDD in Ohio to decide who is eligible for services.
The instruments, designed to gather information about a person, identify if the person has substantial functional limitations in selected life skill areas. If the administration of the C/OEDI determines that the person has three or more substantial functional limitations, then that person would be eligible for services from the county board of MRDD.
These eligibility determination instruments are important to a person with MRDD, because it can mean the difference between re-ceiving services and not receiving services from the county board.
OLRS’ involvement with C/OEDI issues primarily involved: 1. The county board’s refusal to administer the C/OEDI and 2. Appealing the county board’s eligibility decisions.
Individuals who contacted OLRS about C/OEDI issues needed different kinds of advocacy.
Examples of OLRS advocacy
In several cases, county boards administered the C/OEDI and found that individuals did not have three or more substantial functional limitations and were not eligible for services. OLRS advocacy in these kinds of cases included either assistance with self-advocacy on how to challenge the county board’s decision or providing representation during the hearing and appeal process.
Some cases involve county boards that refuse to administer the C/OEDI due to a lack of documentation to show that a person had a developmental disability (DD) before turning 22 years old. In one case, an OLRS investigation identified documents and other information that showed the person had a DD before turning 22. The county board agreed to administer the C/OEDI.
In other cases, OLRS’ investigations showed that the first C/OEDI administration did not include accurate, updated information about the person. In these cases, OLRS negotiated with the county boards to use the new information and to administer the C/OEDI a second time.
In one case, OLRS advocated for an individual at her appeal, arguing that based on the results of the C/OEDI, the person had limitations and appeared to be eligible for services. OLRS encouraged the county board to review the information and documentation from the C/OEDI and reconsider their decision. The county board reviewed the information and decided the person was eligible.
In another case where a person was in the appeal process, OLRS advocated for her at her hearing. OLRS used the results of an independent evaluation to help the person win her appeal for services. The documentation from the independent evaluator provided additional information for the C/OEDI to support that the person had a limitation and justified eligibility for county board services.
The final example involves a person who appealed a county board’s decision to not administer the C/OEDI based on a previous IQ score. OLRS advocated for the client at the appeal, arguing that the bulk of the documentation, including other IQ test results, showed that the person had a developmental disability and should be administered the C/OEDI. The county board agreed to administer the C/OEDI and the client was eligible.
These case examples demonstrate OLRS’ successful advocacy efforts. It is apparent that accessing county board services is an issue among people with mental retardation and developmental disabilities. OLRS will continue to advocate for individuals seeking access to county board services.
If you feel you have been inappropriately denied services by your county board of MRDD, you can contact OLRS for assistance.
House Bill 3 and voting procedures for people with disabilities who are unable to sign their name
Through information and education, a group of disability advocates and agencies was able to obtain change in an important voting bill recently passed by the Ohio General Assembly.
House Bill 3 (HB 3) included sweeping changes in Ohio’s election laws, some of which were necessary to bring Ohio into compliance with the federal Help America Vote Act.
Among other things, the bill creates a “voting power of attorney” for people who are unable to sign their name because of a physical disability. Originally, it was unclear to advocates what “unable to sign” might mean, and whether this provision would be mandatory or would be a tool for use by people with disabilities, in addition to other accommodations that would be required under existing federal law.
The bill appeared to be an attempt to accommodate voters with disabilities, but did so in a burdensome way. It did not address how a person who was “unable to sign” for elections purposes could “attest” for the purposes of the voting power of attorney. It also failed to acknowledge that many, if not all voters would be able to comply with a state law signature requirement through reasonable accommodations, as required by federal law.
After significant educational and informational activities by disability advocates and service agencies, several changes were made to the final bill.
First, the person with the disability may either execute a power of attorney or may appear at the county board of elections and make an oral designation of a person to sign their name for them. This responded to concerns that a person who was “unable to sign” for voting purposes was also unable to “attest” in the new power of attorney.
More importantly, language was added in the final bill to specify that the provisions of the law apply only when a person cannot physically sign their name or make a mark when provided “reasonable accommodation, including the use of assistive technology or augmentative devices.”
With this language, it is clear that a board of elections or other elections official must allow a person with a disability to use an accommodation of their choice to sign any elections document, including a candidate petition, ballot, or poll book.
As required by federal law, the accommodation must be individualized to the person’s needs. Thus, a person who uses a stamp or a computer program to sign his or her name in the normal course of daily living must be allowed to do so in the elections context. Any other reasonable accommodation must be provided to the person with the disability if that will allow him or her to sign his own name.
Some concerns remain regarding the final language of HB 3. It still is not clear whether the voter is required to follow the procedure as set out in this bill in order to provide authority to another person to sign the voter’s name. If this is so, HB 3 presents additional problems, as it requires the person with a disability who is “unable to sign” to somehow “attest” to his or her disability, or to present a statement from a physician in order to provide the oral designation. This is an additional burden and expense for people with disabilities.
Nonetheless, advocates have been hard pressed to imagine a scenario where a reasonable accommodation would not resolve this question for a person with a disability. Assuming that the provisions of the bill are implemented in good faith by elections officials, there should be very few instances where the voting power of attorney law comes into play unless the person with a disability chooses to use it.
Signatures and technology: a personal observation
—by Michael Kirkman, OLRS Legal Director
In dealing with HB 3, it was easy to infer a limited understanding of the promise that technology holds for people with disabilities, and that such technology is a tool to be used, much as others use tools in their daily lives.
At issue was how a voter with limitations in fine or gross motor ability or another physical disability can “sign” his or her name on an elections document.
The state law language that creates confusion on this issue is at section 3501.011 of the Revised Code. It defines “signature” for the purposes of election law. It allows a voter to make a cursive signature or, “for persons who do not use a cursive-style legal mark during the course of their regular business and legal affairs,” to make the mark they use so long as it “is written in the person’s own hand.”
Now, those of us who have dealt with and thought about these issues recognize that no one really writes a mark in our “own hand.” We use a tool. An assistive device. Technology. Otherwise known as a “pen.”
For those of us practicing in federal court, we have electronic signatures that allow otherwise unsigned documents to comply with rules that require a “signature.” Other examples like this abound.
In other words, in every venue but elections, the notion of what is a “signature” is flexible, as required by the circumstance. It is this insight that should be at the core of implementing the accommodations language in HB 3.
Did You Know?
OLRS receives more requests for assistance on Monday. Conversely, requests for assistance are at their lowest on Friday.
Ohio Legal Rights Service v. St. Vincent Family Center
Court opinion: Ready access to the records of children at licensed residential facilities
For the second time in less than a year, a court has upheld the statutory authority of the Ohio Legal Rights Service (OLRS) to obtain access to restraint and seclusion logs kept by a children’s mental health facility.
In the case of Ohio Legal Rights Service v. St. Vincent Family Center, the Court denied the Center’s motion to dismiss and granted OLRS’ motion for summary judgment. The Court ruled that under state law, Ohio Revised Code § 5123.60, OLRS had the right to access all records related to the care and treatment of a person receiving services in the Center, which was licensed and certified as a mental health provider. The Court rejected an argument that such access was limited to those clients “represented” by OLRS.
The Court also ruled that OLRS access was not prohibited by the federal privacy regulations under HIPAA. OLRS access is allowed because it is “required by law,” and because OLRS is a “health oversight agency” as those terms are defined in the federal regulations.
This ruling mirrors the holding of the United States District Court for the Southern District of Ohio in the case of “http://olrs.ohio.gov/asp/OLRSvBuckeye.asp” Ohio Legal Rights Service v. Buckeye Ranch, reported at 365 F. Supp. 2d 877 (S.D. Ohio 2005). That decision was not appealed and the records were provided to OLRS.
Finally, the St. Vincent court affirmed the right of OLRS to issue a subpoena for records if a facility denies a request. This allows OLRS to enforce its authority to access records without the delay and expense of court action.
A copy of the decision can be found at http://olrs.ohio.gov/asp/olrsvstvincent.asp.
Martin Litigation Update: Trial date set for October 23, 2006
A trial date has now been set in OLRS’ community integration case —Martin v. Taft. The court, after conferring with counsel for the parties, scheduled the trial to begin on October 23, 2006. It is expected that trial will take two to three weeks, with each side calling several expert witnesses.
Additionally, the court has issued a scheduling order that requires the parties to complete discovery by June 16 and to file any dispositive motions (such as a motion for summary judgment) by no later than June 30. Briefing on those motions, if any, would be complete by July 24.
Finally, the court also scheduled a settlement conference in the case for September 12, 2006. OLRS continues to view settlement as a legitimate option in this complex, much delayed case, but only if it is possible to do so in a way that protects the interests of the plaintiff class. Otherwise, the issue of Ohio’s compliance with the integration mandate of the ADA will be submitted to the federal court for resolution.
The Martin class action lawsuit was originally filed by OLRS in 1989 on behalf of four Ohio citizens seeking to end Ohio’s practice of segregating people with mental retardation and developmental disabilities in institutions—when they choose to be served in a more integrated setting appropriate to their needs.
OLRS will move to new location
After more than thirty years at the same location, OLRS will be moving to the LeVeque Tower in late spring, 2006. The LeVeque Tower is located at 50 West Broad Street in downtown Columbus. The move will provide OLRS with a consolidated floor plan and considerable cost savings. While the location will change, the OLRS local and toll-free telephone numbers and web site address will remain unchanged.
More information about the move will be available in the next issue of the DD Quarterly.
Service Coordination: A Guide for Families
This publication provides information about Ohio’s Family and Children First system, including information about the county Family and Children First Councils, Individual Family Service Coordination Plans, County Service Coordination Mechanisms, and the important role that families have in this system. The Ohio Legal Rights Service created this publication through a contract with the National Alliance for the Mentally Ill of Ohio (NAMI Ohio) and with funding from the Ohio Department of Mental Health.
For a copy of the guide, visit: http://olrs.ohio.gov/ASP/pub_ServiceCoordination.asp
Parent advocates can make a difference. That’s the message DD Council member Michael Scholl conveyed to Council representatives in February when he shared information about research recently conducted on DNA samples provided by 100 children and family members—including his daughter—who are affected by Cardio-Facio-Cutaneous (CFC) Syndrome.
Within the past few months, Dr. Katherine A. Rauen, and colleagues from the Comprehensive Cancer Center, at the University of California in San Francisco, conducted research on the DNA samples and identified three genes that play a significant role in CFC. The research is reported in Science Online, at www.sciencenews.org/.
Scholl, of Worthington, is in his fifth year on Council. His daughter, Maddie, 16, is one of 300 worldwide, and one of eight in Ohio to have CFC, a rare disorder that is characterized by cardiac diagnoses, distinct facial appearance, degrees of mental retardation, coarse wooly hair, and growth delays.
The Scholl family attended the 2005 CFC International Conference in Orlando, FL, and learned about its Biobank, which is a collaboration between the CFC International and six other genetic advocacy groups. The project links researchers to the families who have critical input into research questions and studies.
Scholl, who has three other daughters, and is a hearing officer for the Ohio Industrial Commis-sion, said his family donated mouth-swabbing DNA and blood samples taken by a local nurse. The samples were shipped to the CFC Biobank, which holds the largest collection of DNA and clinical data that is available to researchers.
Interestingly, Scholl said a doctor at the international conference said parent-advocates, although well-intentioned, have little impact on progress, and that such strides are better left to large, sponsored grants and other endeavors.
“I think in his mind he was trying to make a reality-based comment,” Scholl said. “Parents and advocacy groups can accomplish quite a bit despite what the experts think. This code was broken because of what the parent advocates did.”
This isn’t the first time that Maddie, who is a freshman at Worthington Kilbourne High School, has participated in research. Scholl said his daughter, who runs track and throws softball in the Special Olympics, also was included in a study as an infant. Research from that proved children with CFC need not have certain surgeries as previously thought.
For more information, visit: www.cfcsyndrome.org; CFC International, 183 Brown Road, Vestal, NY 13850; Call, (607) 772-9666; e-mail: bconger@cfcsyndrome.org.
News from Nisonger Center
The Nisonger Center
The Ohio State University
323 McCambell Hall
1581 Dodd Drive
Columbus OH 43210
Phone: (614) 688-8472
Fax: (614) 247-6073
rabidoux.1@osu.edu
Elsie Helsel Toy and Technology Library
Four-year-old Kaylee squeals gleefully as Boohbah dances and sings at the touch of her switch. She has played non-stop with this toy since borrowing it at the Toy and Technology Library (TTL) two weeks ago.
Play is a primary means by which children learn; however, many children with disabilities are unable to operate commonly available toys. For these children, toys may need to be modified for play skills to develop. The few adaptable toys commercially available may be prohibitively expensive for many families. The Toy and Technology Library, a program of the Nisonger Center on the campus of The Ohio State University, includes more than 1500 items available for loan allowing children with motor, cognitive, communicative, or sensory impairments greater access to play.
The library has been in existence since December of 1990 and serves approximately 300 families per year. It includes a wide variety of toys carefully selected for access and developmental appropriateness. All toys are loaned at no cost to families.
This project is more than a library that loans toys—it helps parents take the “next step” in play. Toys are categorized by their developmental and functional levels including:
- Infant toys,
- Fine motor and manipulative toys,
- Musical toys,
- Language-based toys,
- Games,
- Puzzles,
- Sensory & Perceptual toys,
- Switches and switch-activated toys, and
- Simple communication devices.
Some toys are generic and may be found at a variety of toy stores, but have been selected for specific developmental characteristics, or features that facilitate access and manipulation. For example, the pounding toy is a generic toy that may easily be found in local stores. It presents the child with the opportunity to work on fine motor skills such as eye-hand coordination, grasping, and beginning tool use.
However, another child may not be able to access and manipulate this toy, and may need extra proprioceptive input to support his/her interest and successful play. The Toy and Technology Library has pounding toys to support the needs of both of these children.
One type of toy with over 200 items available for loan is the Switch and Switch-Activated toy. In addition to standard switches such as Big Red, Jelly Bean, and Buddy Buttons, the Library also stocks less common switches such as Pal Pad, Membrane switch, String switch, Specs switch, Tilt switch, and Thumb switch which allow modified access to a toy. TTL also houses a variety of switch-activated toys such as musical toys, stuffed animals, and bump-and-go toys.
A variety of “low-tech” voice output devices (Big Macks, Step-By-Step, Cheap Talks, Chipper and Message Mates, and a talking photo frame and photo album) are also available for loan to families as they get started in the augmentative communication process.
Also housed in the library is a computer lab. Although these items are not for loan, visitors may preview and trial various computer access devices and software programs prior to purchase.
The computer lab consists of four computers and a variety of alternate access devices such as touch windows, switches, expanded keyboards, mouse/trackball devices and modified keyboards. More elaborate augmentative and alternative communication devices are not available at the Library.
Environmental Control Units (ECUs) are in another adaptive toy category. TTL offers these units to allow the user to activate simple electrical devices through single switch activation and to provide a bridge to more complex ECUs a child may need later life.
A vital component of the Library’s success is its staff. The Library is managed by Mary Jo Wendling, OTR/L, an occupational therapist with 19 years of experience in the evaluation and treatment of children with disabilities. Wendling teaches family members about computer access and software options, and consults with families regarding optimal (both low and high tech) uses of equipment. She consults with both professional and parent groups on a variety of issues relating to alternative technology and its uses. Evaluations are offered to families as they explore assistive technology options for their children.
One area of specialty offered includes all of the Intellitools products. “This is an area that I take very seriously,” states Wendling. “I attend both local and national conferences and participate in professional groups to keep current so that I can share the most up-to-date assistive technology information and resources with central Ohio families and professionals.”
Families may borrow items from the Library for one month. Each borrowed item includes information regarding vendor name, manufacturer, and price. This assists families who may later wish to purchase the item.
Funding for the TTL is provided through contributions and the Nisonger Center. All contributions to the Toy and Technology Library are designated for purchase of items for families.
To facilitate access to the libraries’ resources, the TTL operates two satellite sites in the Columbus area. These are housed at the Childhood League Center and at a newly established lending site within Dublin City Schools (for Dublin students only).
Many professionals access the Library to preview devices, toys and switches prior to making purchases for their own programs. It is strongly suggested that visitors make an appointment first.
The Cerebral Palsy Association of Ohio and its former president Elsie D. Helsel, Ph.D. provided substantial financial support to expand the Toy and Technology Library. Elsie Helsel currently serves as Member Emeritus of the DD Council.
For more information or to make an appointment, contact: Toy and Technology Library, (614) 688-3431 or email: wendling.3@osu.edu.
Every Healthy Person
To stay healthy, ask about regular checkups & preventive screenings.
Ohio Department of MRDD & Ohio Department of Health
“Every Healthy Person” is a campaign to bring the importance of wellness and preventive health care to the attention of Ohioans with developmental disabilities, their families, caregivers and medical practitioners.
Individuals with developmental disabilities often spend great amounts of time and effort on finding housing and supports needed to live in the community. However, they may be ignoring basic health care practices and healthy lifestyles.
This campaign and its accompanying tools and materials was developed to coordinate with “Healthy Ohioans,” a program of ODH.
To request a checklist of screenings recommended for adults with developmental disabilities, or to learn more about the campaign, visit: http://odmrdd.state.oh.us
Materials funded in part by the Ohio DD Council and designed by its public awareness project, AXIS.
Worthington Libraries become more accessible with federal funds
The two Worthington Libraries, located in the north Columbus suburb of Worthington, have been made more accessible to people with all types of disabilities through a grant from the State Library of Ohio.
The library system hired the AXIS Center for Public Awareness to provide disability awareness trainings. In four separate sessions, AXIS consultant Karla Lortz presented information to more than 127 library personnel.
Known as the Services to People with Disabilities grant program, the monies came from the Library Services and Technology Act (LSTA) federal funds, and are part of a five-year overall plan.
Worthington Libraries’ move toward greater accessibility started with an interest in reaching out to more patrons, said Bill Meltzer, Adult Services Librarian, and coordinator of the project.
While transportation to the library for people with disabilities emerged as the number one problem, the priority for the library became staff awareness. “The utmost value was having a trained and helpful staff able to assist people with disabilities in a respectful and effective way,” Meltzer said.
A requirement of the grant was to form a community advisory committee made up of library staff and citizens with disabilities. This group offered even more suggestions on what the library could do to improve accessibility. For instance, lowering or relocating items for depositing change, etc. to better enable patrons using wheelchairs to use the equipment.
With a focus on assisting those with visual impairments, the library purchased various levels of lighted magnifying glasses, most of which are portable so patrons can take them into the stacks and hold them up to books and read labeling. Another stationary, goose-necked magnifier is situated on a desk where people generally fill out various applications.
Other technology that assists patrons at the libraries includes a closed circuit TV color magnifier allowing high-powered enlargements of documents, and computer programs such as the MAGic screen magnifier, and JAWS, which is a voice recognition software program. The library has a host of descriptive videos, large print books, and audio books on tape and CD, Meltzer said.
Nicole Hansen, 58, is one patron with a visual impairment who went from not using the library to visiting twice weekly due to the accessible technology and disability awareness training.
”If I have any questions, I can go and ask the staff,” Hansen said. “It doesn’t make me feel bad or freaky or anything. There’s no discrimination here. I don’t feel like they can’t be bothered with me.”
She said the accessible technology at the library is assisting her with various projects, including a job search. Recently she took a computer class at the library, and used a magnifier to look at family photos.
The staff trainings included a DD Council produced video, “The Ten Commandments,” that shows examples of interactions between people with and without disabilities. Discussions followed sections of the video so staff could discuss the content.
From a staff member standpoint, Joe Rushton, Adult Services librarian, said the training was very helpful. “I think it made us much more aware,” he said. “You could see the interaction (in the video) and if you actually see the situation it gives you a lot more information” on how to approach people.
Rushton said other libraries would benefit from this type of staff training. “They would be much more aware of things that could be problems and how to deal with them.”
Missy Lodge, head of the State Library of Ohio programs and development, said efforts such as those by Worthington are important. “It’s the feeling of the State Library and the LSTA that people with disabilities are a large segment of the community that the libraries should be providing access for,” she said.
For more information, contact: Bill Meltzer, (614) 807-2626, wmeltzer@worthingtonlibraries.org; or Missy Lodge, State Library of Ohio, toll free (800) 686–1532, fax (614)728-2788, mlodge@sloma.stte.oh.us
DD Council hosts first reunion of Partners in Policymaking Graduates
More than 80 people attended the DD Council’s First Annual Gathering of Ohio’s Partners in Policymaking Graduates, December 2-3, at the Midwest Hotel in Columbus.
Partners is an innovative leadership training program for adults with disabilities and parents/family members of individuals with developmental disabilities. The purpose of the program is two fold: teach best practices, and teach the competencies of influencing public officials.
Partners in Policymaking is a program that educates participants to be active partners with those who make policy. Participants become competent to change their own lives, and then to work for changes that will affect others with disabilities at local, state, and national levels. Partners graduates are expected to be agents of long term change. They learn there are no “quick fixes.”
Partners in Policymaking was created by the Minnesota Governor’s Council on Develop-mental Disabilities in 1987. Since then, Partners programs have been implemented and funded in 46 states, as well as in the United Kingdom. Approximately 13,000 Partners graduates are part of a growing national and international network of community leaders who serve on policymaking committees, commissions, and boards.
In today’s political climate of radical change, Partners graduates must work harder than ever to prevent the loss of basic rights for people with disabilities.
DD Council funds the Partners in Policymaking Program in a different geographical area of the state each year. In 2005, Council awarded a grant to The Ability Center of Greater Toledo, with assistance from The Arc of Lucas County, to implement the train-ing for 20 participants. The program was led by Sue Hetrick and Kay Bennett.
Graduates from Council’s Partners classes, former graduates of The Arc of Ohio’s classes, and other graduates now residing in Ohio attended the reunion. Coleen Wieck, founder of the Partners program and Director of the Minnesota DD Council, gave the opening presentation.
Derrick Dufresne, President of Community Resource Associates, a training and management consulting firm dedicated to promoting full community inclusion for people with disabilities, facilitated the conference on Saturday. He urged the Partners to use what they have learned in the training to advocate for rights for those with disabilities.
Partners graduates shared ideas about what they have done, are doing, plan to do, and ways to stay connected with each other. Before leaving the gathering, the graduates made plans to stay connected through a listserve.
This year, DD Council awarded ELP Consulting, Inc., Cincinnati, a grant to provide Partners training in Southwest Ohio. The grant will train at least 20 participants who are diverse in culture, ethnicity and disability. The training will be led by Essie Pederson, Linda Kunick, and an advisory committee.
For more information, or to request an application, contact: Essie Pederson, (513) 871-2181, or sepeder@aol.com
Words can debilitate
—Deborah Kendrick, Cincinnati writer and advocate for people with disabilities
My Uncle Bob died nearly a decade ago due to complications of Alzheimer’s disease. Part of the memory of him is preserved in my upstairs hall, where, in a black-and-white photo, he is a jovial young man helping a four-year-old me with her Christmas doll. Alongside the image in memory is the last time I saw him: a confused, dear old man who didn’t recognize his siblings or touchstones of his long, rewarding life.
As is characteristic of the disease, Uncle Bob was prone to wandering physically in his surroundings and mentally in lands known only to him.
Alzheimer’s is one, albeit perhaps the most debilitating, of a collection of disabilities that affect cognitive or intellectual functions. As our population ages and technology advances, the numbers at both ends of the age continuum with such disabilities are increasing.
Babies with Down syndrome who once lived abbreviated lives in isolation now survive and thrive, contributing to their environments. Students who once were dismissed as stupid or lazy are getting help in many educational settings for what are now (usually) seen as differences in learning styles and attention spans.
We can congratulate ourselves as a culture for the progress made in integrating people with intellectual disabilities. We can laugh with and at the situations wrought by an intellectual disability in a movie such as The Ringer, and we feel good about ourselves when we read about a little boy with a developmental disability who becomes a valued player on his soccer team.
But I shudder when I hear a colleague, an otherwise delightful and generous person, say whenever she makes a mistake, “I must be retarded.” It’s a small thing, you say, but words convey attitudes, and we all know that the attitude weighing heavily in such a word is anything but positive.
There were words my uncle’s generation used to refer to women, negative words that we no longer hear. And there was the n-word for blacks and some other mercifully now nearly silenced negative racial epithets.
If you want to do something good for people with disabilities—something that won’t cost you any money or even time—watch your language. And teach your children to do the same.
Encourage use of Person-First language by using these colorful bookmarks. Free for quantities up to 300. To order, contact AXIS: (800) 231-2947 v/tty or axiscenter@aol.com
Governor appoints three members to DD Council
The Ohio Developmental Disabilities Council (ODDC) announces the three-year appointment of Charles W. Beatty of Mason, Dianne Koehler of Cincinnati, and Jane Phillips Novick of Dayton, as new members of Council. Governor Bob Taft made the appointments.
Charles Beatty is a retired staff assistant at AT&T, and is involved in many advocacy groups such as a member of the Ohio Olmstead Task Force, a board member with the Arc of Ohio, and the Family Advisory Committee of ODMRDD.
“I am trying to help remove existing barriers to the Developmental Disability population in Ohio and bring about changes that promote their independence, their productivity, and their rightful place in the community,” he said. Beatty and his wife raised 55 foster children and five of their own. Many of the children and an adopted son had special needs.
As a Council member, he will serve on the Employment/Health, Public Policy, and Leadership Development committees.
Dianne Koehler instructs self-advocates on Rights & Responsibilities, a class she helped develop at the Arc of Hamilton County. She is a board member of the Arc of Hamilton County, and People First of Hamilton County, and is a volunteer to a support group called Leaders in Action. She is an active self-advocate and advocates for others with disabilities.
Koehler enjoys attending city council meetings to speak out whenever issues arise that are important to her. She also attends a variety of public hearings in Cincinnati.
“I know what it is like to be in the community,” she said. “It hasn’t always been easy, but I’ve worked hard to take care of myself, and become independent. I’m ready for the hard work to make things better for myself and others.” Koehler attended Oak Hills High School.
Jane Phillips Novick is a former high school history teacher, who is currently a member of the ODMRDD Family Advisory Board and chair of its Employment Committee. She started the South Dayton Parents’ group in 2003, and is a member of the Association for People in Supported Employment.
Novick is married and has four children, one of which has a developmental disability. “I have learned that it is not enough to work to obtain services just for my daughter. Rather, it is important to make changes and improvements that will help all those involved in a similar situation,” she said.
One aspect of advocacy that is important to Novick is sharing information. She urges parents of those with disabilities to do just that. “We need to communicate among each other.”
Novick will serve on Council’s Health & Employment, Children’s Issues, and Public Policy committees.
Reappointed to Council for a three-year term are Shari Cooper, Dayton, Denise Kissel, Akron, Mary Butler, Elyria, and Todd Gatewood, Coshocton.
Council welcomes agency representatives
DD Councils are required to have member representatives from concerned state agencies and local agencies that provide services to people with developmental disabilities. New representatives include:
Peter Keiser, who will represent the University Center for Excellence in Developmental Disabilities Edu-cation, Research and Service in Cincinnati.
Laurie Damon, who will serve as the representative from the Ohio Department of Job & Family Services.
Vicki Grosh, who is the County Board of MRDD representative. She is Superintendent of the Hocking County Board of MRDD.
Advocates urged to check for incomplete parking signage; lack of fine amount can mean no enforcement
Are your city’s accessible parking signs legal in order to allow municipalities to enforce the maximum allowable fine? Don’t let happen in your city what took place in Columbus.
In a January 23 article in The Columbus Dispatch, reporter Jodi Andes found that for a year and a half the City of Columbus ignored information from its own city attorney’s office and requests by its parking bureau to erect the proper signage, which must include a sign indicating the cost of the fine.
The state legislature has allowed for a $500 maximum fine for parking illegally in accessible spaces, but most communities have a $250 parking fine for such violations.
In Columbus, people who had been ticketed often contested and won their cases on the point of incorrect signage. It was announced on January 31 that the proper signs were finally erected.
If you notice that accessible spaces in your community do not have the complete signage necessary by law, bring it to the attention of the city parking division, your city council, and mayor. If no action is taken, discuss the issue with your local newspaper editor.
According to state law, cities not complying with the proper signage can be fined $25 per day per meter.
Council grantee gains national recognition in Ebony Magazine
TyKiah Wright, CEO and founder of WrightChoice Intern Program, Inc. (WCIP), was featured in Ebony Magazine’s February issue for its “2006 Young Leaders of the Future.” The article spotlighted the accomplishments of 30 leaders under age 30—“rising stars” who have taken on leadership roles.
Wright was nominated for the honor by Jim Stowe, director of the Community Relations Commission for the City of Columbus.
WCIP has been a grantee of the DD Council since 2004 for its college visits and its Project Reach program that exposes high school and college students to professions in the MRDD field.
After publication, Wright received phone calls from people interested in expanding WCIP to some major cities outside Ohio. Due to her presence in Ebony, Wright will also be featured in an article on the website of the Office of Disability Employment Policy (ODEP). She is the statewide coordinator for High School High Tech, a program sponsored by ODEP.
“It’s a privilege and an honor to be recognized by the Ebony Magazine,” she said. “Ebony is the predominant magazine in the African American culture. It means a lot to know I was selected from among a very competitive pool of candidates.”
“My goal from this is to get more exposure to companies in Columbus and the Central Ohio area so we can help promote diversity in their internship and college training programs,” she said.
For more information, contact: WCIP, 6230 Busch Blvd., Suite 101, Columbus OH 43229t, (614) 802-2364, fax (614) 802-2361, wright@wrightchoice.org, or visit www.wrightchoice.org.
Save the date...
Universal Design & Visitability: From Accessibility to Zoning
July 13-14, 2006
Knowlton School of Architecture
The Ohio State University
Columbus, OH
To be added to a list for updates, email:ADA-OSU@osu.edu
If you’re looking for workshops on learning disabilities, hearing loss, ex-offender employment, autism, brain injury, and more, then this conference is for you!
Gateways IV Today’s Changing Workforce: Achieving Independence and Employment
May 1-2, 2006
Hyatt Regency Hotel
Columbus
Registration fee: $50
For registration information, contact: AXIS, (800) 231-2947
For programmatic information, contact: Darlene Britford
(614) 781-8732
RSC.Gateways@rsc.state.oh.us
Sponsored by: Ohio’s Rehabilitation Services Commission, Department of Mental Health, Department of MRDD, and Department of Education
Moving On
Federal programs to assist transition-age youth with serious mental health conditions
Myriad federal programs can address the wide range of needs of youth with serious mental health conditions who are transitioning into adulthood. The Bazelon Center has prepared fact sheets about 57 programs, run by 20 or more different agencies in nine departments of the federal government.
For more information, visit: http://www.bazelon.org/publications/movingon/
JAN offers workplace accommodations and technical assistance by phone and computer
The Job Accommodation Network (JAN), the foremost provider of workplace accommodation information and technical assistance on the Americans with Disabilities Act, will unite national experts on job accommodation and disability employment law to provide training opportunities via one-hour audio conferences and Webcasts in 2006.
The Accommodation and Compliance Training Series provides a convenient opportunity for human resource managers, compliance officers, disability and diversity managers, and other professionals to discover ways to enhance an organization's ability to accommodate and employ people with disabilities.
Topics of sessions include: Disability Etiquette in the Workplace, EEOC on Job Accommodation Issues, The ADA at 16: Trends and Developments, Strategies for Recruiting and Accommodating in the Health Care Industry, and CAP and JAN: Successful Accommodation Strategies.
The $25 per session registration fee includes admission for each site to the audio conference or Webcast with accessible training materials and real-time captioning available. Any number of people may participate at individual sites.
For more information and registration, visit: http://www.jan.wvu.edu/teleconf/Teleconf.htm
Journal of Vocational Rehabilitation: Special Issue on Workplace Discrimination and Disability
Volume 23, Number 3/2005. Editors: Brian T. McMahon and Linda R. Shaw.
Articles include the following national EEOC ADA research projects:
- Workplace discrimination and mental retardation
- Workplace discrimination and spinal cord injury
- Speech impairment and workplace discrimination
- Workplace discrimination and Americans with cerebral palsy
- Multiple sclerosis and workplace discrimination
- Workplace discrimination and asthma
For more information on this special issue, visit: http://iospress.metapress.com/link.asp?id=dq8d4mbdh8hw
College Scholarships for Individuals of Parents with Disabilities
In recognition of the more than nine million parents with disabilities in the U.S. and their families, Through the Looking Glass (TLC), a non-profit organization, is pleased to announce the 2006 College Scholarship Fund.
Up to ten separate $1,000 awards will be given.
Scholarships are available to graduating high school seniors who:
- Demonstrate academic and personal achievement;
- Have grown up with at least one parent who has a disability; and
- Will be a high school graduating senior by Summer 2006.
TLC is funded by the National Institute on Disability Research and Rehabilitation (NIDRR), U.S. Department of Education.
For more information, or to obtain an application, visit: www.lookingglass.org or call: (800) 644-2666.
DD Council member receives volunteerism award
On March 6, the Hamilton County Board of MRDD announced DD Council member Meg Kane as its recipient of the Stuart Warshauer Volunteerism Award.
Kane, of Cincinnati, is in her fifth year on Council and is chair of the Public Policy Committee. The award recognized her volunteer contributions in the area of advocacy.
“When a person volunteers, everybody wins,” says Kane, who for years has advocated for her son Kevin, 26, who has significant disabilities. “I think the award is a reflection on those who have enabled and empowered me, and is owned by everyone on Council. It is also a reflection on me as I was supporting Kevin. It’s been a personal journey of mine to support others like my son.”
Warshauer, also of Cincinnati, and a former chairman of DD Council, presented the award to Kane at the HCBMRDD 2006 Awards Banquet. “Stuart has been a mentor and a friend to me, and it was meaningful for me to receive the award from him,” Kane said.
Funding still available for Home Energy Assistance Program (HEAP)
HEAP is a federally funded program administered by the Ohio Department of Development. It is designed to help income eligible consumers pay for winter heating costs. To participate, your total household income must be at or below 175 percent of the federal poverty level. HEAP applications will be accepted through May 31, 2006. The hotline staff can answer questions and assist consumers with completing the application and determining the necessary proof of eligibility.
Contact the Office of the Ohio Consumers’ Counsel: phone (877) 742-5622 or e-mail occ@occ.state.oh.us
Call for Participants: Adult Siblings of Individuals with Disabilities
—National Sibling Consortium & Vanderbilt Kennedy Center for Research on Human Development
We know surprisingly little about the relationship between individuals with disabilities and their adult siblings. To better understand this long-lasting relationship, we have created the “Adult Sibling Questionnaire” for anyone age 18 or over who has a sister or brother with disabilities.
The questionnaire covers these general areas: you, your sibling, your family, joint activities, support needs of sibling, your health and well-being, and reflections on your relationship with your sibling. The survey should take about 25 minutes to complete; all answers are anonymous; and participation is voluntary.
A summary of the results will be provided to those who request it. In addition, the findings will be presented at The Arc National Convention, October 12-14, 2006, and in publications and scientific journals.
You may participate by obtaining a copy of the questionnaire online: https://kc.vanderbilt.edu/FamilyResearch
Summit County Gift Gallery looking for items to sell in new retail outlet
Summit County’s MRDD board is pursuing more opportunities for people with disabilities to be integrated into real community work settings.
The board is currently developing community-based, retail-integrated day program locations at shopping plazas in Twinsburg and Coventry Twp. The retail storefronts greet potential shoppers just as the other tenants of the retail plazas.
Named The Gift Gallery, the stores are being marketed as a gift retailer with a merchandise mix of quality, unique gifts perfect for any occasion and any budget. The stores will feature gifts made by and sold by people with disabilities.
The Gift Gallery is seeking both one-of-a-kind and mass-produced, high-quality items for sale in its retail outlets. Items may include baskets, artwork, pottery, candy, greeting cards, woodwork, sculpture, gift bags, soaps, or any other items.
County MRDD boards, service providers, micro-ventures, self-starting entrepreneurs, or anyone with a disability who wishes to sell their work may send samples to be considered. Samples will not be returned. Products that are selected for sale may be purchased in quantity at a wholesale cost, or stocked on consignment.
For more information, contact: Kevin McGee, CSBMRDD Gift Gallery, 89 E. Howe Rd., Tallmadge, OH 44278, (330) 634-8877, kmcgee@csbmrdd.com
DD State Plan available for review and comment
The Oho DD Council is currently developing its 2007-2011 State Plan for Developmental Disabilities that will describe its priorities and projects to be funded.
A draft will be available for public review and comment after April 19, 2006. All input will be provided to Council for its consideration. The State Plan will be completed in July.
Interested parties may obtain a copy of the draft in two ways:
- Viewing Council’s website at www.ddc.ohio.gov
- Phoning Council’s office (614) 466-5205 or toll-free (800) 766-7426
Comments are welcome. Please e-mail to: mary.smithson@dmr.state.oh.usor write to:
Mary Smithson
ODDC
8 E. Long St., Ste. 1200
Columbus, OH 43215
Interested parties also may attend a meeting and give comment in person at the DD Council office, Wednesday, May 10.
Those interested in speaking at the meeting should call Council’s office and reserve a time between 10 am and 2 pm. Reservations must be made by May 5. If Council does not receive any reservations, the meeting will be cancelled.
Phone toll free: (800) 766-7426, or locally: (614) 466-5205.
Teaching by Design: Using Your Computer to Create Materials for Students with Learning Differences
—2005, Kimberly S. Voss
With this book, and access to a computer, printer, and office and craft supplies, you can make learning for a child with learning differences easier, richer and fun for both of you.
It is suitable for the computer novice or pro and provides comprehensive instructions, illustrations, and anecdotal information that will encourage you to get started.
Organized into three parts for both PC and MAC users:
- Controlling variables: explains the vital role that presentation (text, images, layout and media) plays
- Graphic skills: provides a mini-tutorial on graphic programs
- Recipes: includes over 40 sets of step-by-step instructions for creating projects and materials
Includes CD-ROM of graphic templates, 400 photos and illustrations, color photo insert and resources.
334 pp. $34.95 plus S&H. Woodbine House, 6510 Bells Mill Rd., Bethesda, MD 20817, (800) 843-7323, www.woodbinehouse.com
Listening to the Experts: Students with Disabilities Speak Out
-2006, Elizabeth B. Keefe, Veronica M. Moore, Frances R. Duff
This book gives self-advocates, families and educators the inspiration and information they need to support inclusion, shape effective teaching practices, and ensure that academic challenges and social opportunities are open to all students.
Students with a wide range of disabilities talk about:
- Struggles and triumphs with schoolwork
- Friendships with peers
- The meaning of inclusion
- Complex feelings about special education
- Practices and policies that helped and hindered their progress
- Ingredients of positive classroom environments
- Characteristics of good teachers and administrators
- Future plans
Interspersed with the student essays are chapters by parents, peers, and professionals.
218 pp. $19.95 plus S&H. Brookes Publishing Co. PO Box 10624, Baltimore, MD 21285-0624; (800) 638-3775; www.brookespublishing.com
TEAMWORK: A Dog Training Manual for People with Disabilities
—Stewart Nordensson and Lydia Kelley
These two manuals are designed to teach people with disabilities to train their own dogs.
TEAMWORK I offers insight into dog behavior while giving clear and easy to understand instructions on how to teach basic obedience skills. It includes a discussion of training philosophy, tools/equipment, and how to give basic commands using words, tones or signals.
Individualized exercises are divided into four categories: ambulatory (walk without aid), ambulatory with devices (crutches, canes, walkers), manual wheelchairs, and power chairs and scooters.
TEAMWORK II takes that instruction to the next level, teaching service exercises. It includes chapters on rights and responsibilities of owning a service dog and how to adapt exercises to your needs.
Manuals include easy to read instructions, photos, success stories, and dog breeds used.
150 pp. Spiral bound. $15.00 ea. plus S&H. Top Dog, 5049 E. Broadway Blvd., #102, Tuscon, AZ 85711; (520) 323-6677; www.topdogusa.org
Scholarships for women with disabilities in graduate school
—Sponsored by the Ethel Louise Armstrong Foundation
Scholarships ranging from $500 to $2,000 per year are available to any woman with a physical disability who is pursuing graduate studies at a college or university in the United States.
Eligible applicants are women with a physical disability. Applicants must be currently accepted to a graduate program working towards a Masters degree or above in an accredited college or university in the U.S. Applicants must be active in a local, state or national disability organization.
The award is to offset tuition costs only. Deadline: 06/01/2006.
For more information, contact: Deborah Lewis, Executive Director, 2460 North Lake Ave., PMB #128, Altadena, CA 91001, (626) 398-8840, fax (626) 398-8843, executivedirector@ela.org, Website: http://www.ela.org/scholarships/scholarships_process.html
Believe in My Child with Special Needs! Helping Children Achieve Their Potential in School
—2005, Mary A. Falvey
This book focuses on the idea that disability is natural. Parents of school-age children with disabilities can use this upbeat, reassuring handbook to be successful advocates throughout their child’s education. Falvey challenges readers to find supports to fit the student. She also explains supports that may be useful: social stories, creating positive, welcoming environments, and developing friendships.
Use this guide to:
- Understand your child’s legal rights
- Pursue an inclusive education from preschool to high school
- Collaborate respectfully with educators on IEPs
- Promote your child’s access to the general curriculum
- Encourage educators to use appropriate modifications and assessment strategies
- Support your child as he or she develops friendships
- Develop transition plans to help achieve goals after high school
160pp. $18.95 plus S&H. Brookes Publishing Co., PO Box 10624, Baltimore, MD 21285-0624; (800) 638-3775; www.brookespublishing.com
DD Council seeks applicants for membership
The Ohio Developmental Disabilities Council (ODDC) is seeking applicants for membership terms beginning in October, 2006. ODDC membership must comply with categories listed in the federal DD Act.
Openings this year will be for these categories:
- Individuals with a developmental disability,
- Immediate relatives or guardians of adults with mentally impairing disabilities who cannot advocate for themselves, and
- Parents or guardians of children with a developmental disability.
All candidates should: have experience serving on committees, boards or organizations concerned with people with developmental disabilities; and have first-hand knowledge in the developmental disabilities field. Applicants must have time to attend the OODC monthly meetings, including time to work on at least two committees.
Serving as a member of Council provides the opportunity to get involved and work in a collaborative manner with state policymakers, local providers, consumers, parents and family members. Council advocates for, and plans and conducts activities to improve the system of supports and services for individuals with developmental disabilities and their families.
Governor Bob Taft will appoint members for three-year terms beginning October 1, 2006 and ending September 30, 2009. Application packets are available from the ODDC office and must be completed and returned by May 1, 2006. All applications will be kept on file to fill future vacancies.
For more information and/or to request an application packet, contact: ODDC, 8 E. Long St., Suite 1200, Columbus, OH 43215, toll-free (800) 766-7426, voice (614) 466-5205, tty (614) 644-5530 tty, ww.ddc.ohio.gov/abt/recruit.htm
ODDC Mission
It is the mission of the Ohio Developmental Disabilities Council to create change that improves independence, productivity and inclusion in community life for people with disabilities and their families.
DD Quarterly is produced by AXIS Center for Public Awareness.
DD Quarterly can be viewed at www.ddc.ohio.gov or can be requested in large print or on audiocassette.
Please pass this copy to others who could benefit from it. If you, or someone you know, would like to receiving this publication, at no charge, please call AXIS.
Toll free in Ohio, v/tty:
(800) 231-2947
In central Ohio, v/tty:
(614) 262-8124
Fax: (614) 267-4550
E-mail: axiscenter@aol.com
AXIS STAFF
Sue Willis, project director
Vince McGuire, photographer
Kelley Femia, designer
Beth Kramer, writer/editor
Shari Veleba, writer
Kim Ryan, audio recording
Joyce Talkowski, assistant
Donna Kinney, assistant
Copyright 2006. Content may be reprinted upon request.
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