Detecting Specific Disorders for Amish and Non-Amish Communities Project

Award amount: $50,000 per year

Duration: 2022 - 2026

Grantee: DDC Clinic Center for Special Needs Children 

Council staff contact: Kenneth Latham

Project description: This project is a collaboration of medical professionals, families, hospitals, and teachers in the Amish area of Northeast, Ohio. The primary focus of the project is to visit, diagnosis, test and treat genetic disorders in the Amish community. This project will:

  • Support research comparing rare genetic disorders across multiple Amish communities.
  • Develop up to 30 new diagnostic tests and provide expanded diagnostic testing to Ohio Amish communities at the lowest cost.
  • Expand education and outreach services that includes genetic counseling and support services for Amish families and the medical professionals that care for them.