Testers Needed for Decision Guide for Families with Special Needs

Screen shot of the Stanford Medicine Smartphone app September 18, 2020
by DD Council Staff

The following information was shared by Jennifer G. Johnson, Ed.D. of the Adminstration for Community Living. Johnson is the Deputy Commissioner of the Administration on Disabilities and the Director of the Office of Disability Service Innovations of the U.S. Department of Health and Human Services.

The Administration for Community Living (ACL) has been working with a group of federal and non-federal partners – including several experts from the UCEDD network - to develop a COVID-19 decision guide for families with children with special health care needs. The ACL is seeking your assistance with beta testing this tool.
 
While many children have already started school, parents of children and youth with special health care needs (CYSCHN) will continue to make difficult personal decisions about how to keep their children safe and learning. With guidance from public health experts, parents, and health providers, the Stanford Health Literacy Lab has designed an interactive, educational Guide for Parents of CYSCHN, to help parents make sense of these back-to-school decisions.  Please access the Decision Guide at SCOLGuide. Now in “beta test” mode, the Guide is meant to be used on a smartphone, and to guide discussion with a trusted advisor, such as a child's health provider.  
 
The ACL is asking that you share this with your networks so that the developers at the Stanford Health Literacy Lab can improve upon this tool to make it most useful to families. Please send any feedback within the Guide or to mcjsmith@stanford.edu.