DD Council Connection - August 2021

logo of dd council connection newsletter bannerDD Council Connection is a way for the Ohio Developmental Disabilities Council to introduce to you our Council members, provide updates on the work we do and the grant projects we manage, and inform you on the activities and initiatives of Ohio's community of self-advocates and others who work on behalf of people with disabilities and their families. We hope you enjoy this e-newsletter. Please share your thoughts, story ideas and event calendar submissions with us at DDCInfo@dodd.ohio.gov.

This month's articles include:

Navigating the Maze of Getting Nursing Services

The cover of the booklet called A Guide to Nursing Services in Ohio including a collection of pictures of people receiving services from healthcare providers.Imagine being a parent and finding out that your child has a permanent disability and complex medical needs. The disability may have happened at birth. Or the result of an accident. Or the aftereffects of an unexpected illness. You want what’s best for your child, but you know you will need extra support to ensure that happens.

Your doctor provides you with a physicans order stating that your child requires a skilled nursing level of care. The doctor tells you this can be done by an RN or LPN who provides homecare services. You have the order in hand, but no clue what to do or where to go to find this type of help. What are the options? Where do you start? Most families end up stressed, aggravated and feel defeated. 

Thankfully, a new guide was recently released that helps Ohio families find home care nursing services. The guide covers options for nursing services, including private health insurance, Ohio Medicaid and Medicaid waivers, and more. It provides explanations of complex terms and systems, information on what families need to know about different ways to get and pay for nursing services, and resources with more details, including how to apply. A Spanish version of this booklet will be available soon.
The Guide to Nursing Services in Ohio was created by members of the Ohio Nursing Collaborative, with families in the lead. The Ohio Developmental Disabilities Council is a part of the Collaborative and participated in this project with the hope that this new resource is shared with people who need nursing support at home and with their families or caregivers.
Check out the new guide: A Guide to Nursing Services in Ohio
Questions? Contact the Ohio Family to Family Health Information Center by phone at 844-644-6323 or email at ohiof2f@cchmc.org.

Ohio DD Council Releases Annual Report

The Ohio DD Council has released its Annual Report highlighting its work across Ohio to create change that improves independence, productivity and inclusion for people with developmental disabilities and their families in community life.

Cover of the Ohio DD Council's 2019-2020 Annual Report with the words "A Powerful Partner for Ohioans with Disabilities" and pictures of several people with disabilities.The work and mission of the Ohio DD Council is driven by its Five-Year State Plan, which is developed by input from people with disabilities, family members and interested stakeholders from around the state. 

The report covers the Council’s 20 grants covering a wide range of areas related to issues experienced by people with developmental disabilities. The areas include: 

  • Children and Health
  • Leadership Development
  • Community Living
  • Outreach
  • Communication
  • Public Policy
  • Employment
  • Technology

The projects that resulted from these grants focused on advocacy, education, employment, transportation, community living and more, moving the needle to a more integrated and inclusive Ohio.

"We hope you enjoy reading this report, and recognize the work of the diligent and collaborative community and statewide partners the Council is fortunate to work with to build sustainable initiatives on behalf of Ohioans with disabilities and their families," Carolyn Knight, Executive Director, Ohio DD Council.

Read the Ohio DD Council’s 2019-2020 Annual Report

A picture of a purple bag with the words TechSummit 2021 Looking Ahead printed on it.July’s TechSummit Now Available Online!

If you missed this year’s TechSummit 2021, you can now watch it online! The annual conference was held last month and provided attendees with quality presentations and access to technology vendors.

Each session and vendor booth introduced resources that promoted technology solutions to benefit people with developmental disabilities. Nearly 600 people registered for this conference, demonstrating abundant excitement and interest in this topic. The goal of TechSummit events are to promote independence for individuals with developmental disabilities through the use of technology.

Watch the presentations, get conference handouts and learn about the vendors in the TechSummit Virtual Bag.

The Ohio Developmental Disabilities Council, the Ohio Department of Developmental Disabilities and The Ohio State University Nisonger Center partnered for the 2021 Tech Summit.

DODD Requests Feedback on Early Intervention Family Questionnaire

Announcement from the Ohio Department of Developmental Disabilities (DODD)

The 2021 early intervention (EI)  family questionnaire is now underway. Applicable families include those with an active IFSP on June 1, 2021. If the primary caregiver had a valid email address listed in the EI Data System (EIDS), DODD emailed information about the questionnaire and a link to complete it via Survey Monkey. Questionnaire responses are due September 15, 2021.

A paper survey was mailed to any family who did not have an e-mail address listed in EIDS, had an invalid email listed in EIDS, or had previously opted out of receiving Survey Monkey emails.

Because the Office of Special Education Programs (OSEP) continues to put an increased focus on the response rate and overall representativeness of respondents to states’ family questionnaires, we are again asking local programs for their assistance in ensuring families are informed about the questionnaire and how to access and complete it. DODD sent EI Contract Managers and FCFC Coordinators a list of recipients, copies of the questionnaires and information sheets, and links and QR codes that can be used to complete the questionnaire earlier this week. DODD asks that EI Service Coordinators ensure applicable families on their caseload are familiar with the Family Questionnaire and how to respond.

If you did not receive the survey or if you have any questions, please contact Taylor Hammond at Taylor.Hammond@dodd.ohio.gov.